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Lymphoma Canada's Quarterly Newsletter
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Spring 2018 Newsletter

In this issue:

  1. About Dr. Joseph M. Connors
  2. Meet Sabina Vohra-Miller
  3. Improving Access to Innovative Cancer Therapies
  4. Lymphoma Canada's Travel Grant
  5. Research and News Updates
  6. CLL Watch & Wait Tracker
  7. Conferences and Educational Forums
  8. Upcoming Events
  9. Fundraising Spotlight
  10. Update your Language Preference
Volunteer Profile
New Resources
Patient Resources
 
Nouveaux traitements
Research Updates

About Dr. Joseph M. Connors

Dr. Connors’ involvement with Lymphoma Canada dates back to our embryonic stage. When patients conceived of the idea of an organization to support lymphoma patients, they approached Dr. Connors for his wisdom and support. He provided both and was integral in establishing a plan that brought Lymphoma Canada to fruition. He was also Lymphoma Canada’s first Chair of our Scientific Advisory Board.

A fierce patient advocate, Dr. Connors has touched the lives of countless lymphoma patients and trained scores of hematologists who are sharing their knowledge to benefit patients across the country as well as internationally. 

Dr. Connor’s has long championed research in lymphoma and has published over 250 peer-reviewed scientific articles addressing various aspects of research into lymphoid cancers.

Learn more about Dr. Joseph M. Connors

Meet Sabina Vohra-Miller, a Lymphoma Canada Volunteer



Sabina Vohra-Miller has an educational background in clinical pharmacology and toxicology. In 2016, she retired from her role in biotech as a medical advisor and has been volunteering with Lymphoma Canada ever since. As a volunteer, she contributes to the development of educational materials and patient resources. Sabina is also a new mom to a 1-year-old boy.
Find out more about Sabina

Improving Access to Innovative Cancer Therapies

Lymphoma Canada, with the support of 12 other Canadian Cancer Patient Groups, published a position paper that addressed the increasing trend towards funding delays and denials for new, life-saving cancer therapies in Canada.
Learn more

Lori Hygaard - Recipient of Lymphoma Canada's Travel Grant

Lori Hygaard - Primary Registered Nurse, Regional Cancer Care Northwest, Thunder Bay Regional Health Sciences Centre  

Congratulations Lori Hygaard

 
Lori Hygaard is a member of Lymphoma Canada’s Nursing Advisory Board and was awarded LC’s 2018 travel grant to attend the Canadian Conference on Lymphoproliferative Disorders (CCOLD) in Lake Louise, Alberta in March.

After graduating from Confederation College’s Nursing program in 2003, Lori started working in cancer care almost immediately, first as an in-patient nurse then as a nurse in the chemotherapy out-patient clinic. Currently, Lori works in the Ambulatory Outpatient Cancer Centre in Thunder Bay, ON, where she is the Primary Nurse for Dr. Nicole Laferriere, the Hemophilia Co-ordinator nurse for North-western Ontario and co-lead of a sexual health clinic for oncology patients.  In 2014, Lori received the Human Touch Award that is given out annually by Cancer Care Ontario and received the President’s Award from Confederation College. Outside of work, Lori is a mum of 2 children, enjoys traveling, and spending time with her family.
CLL Patient Goes into Remission Thanks to Single CAR T Cell

Phase 3 Trial Suggests: Revlimid-Rituxan Combo Could Replace Chemo as Follicular Lymphoma Therapy

CLL Watch & Wait Tracker 

If your CLL (Chronic Lymphocytic Leukemia) is slow growing and not causing any serious symptoms, treatment will likely not occur right away. This approach is called 'watch and wait' or 'watchful waiting' or 'active monitoring'.

Watch and wait is a strategy where doctors monitor a patient closely, but do not provide treatment until symptoms appear or change.

The CLL Watch & Wait Tracker app has been designed with the help of Lymphoma Canada to help patients better monitor their CLL symptoms. The app is completely confidential, secure and enables patients to track symptoms from anywhere, at any time.

As a CLL patient it is important to keep your medical team fully informed about how you are coping, and any new or unusual symptoms you may be experiencing (e.g., changes in your sleep, bowel habits, mood, appetite, memory, sexual function). The app enables patients to track similar data over time. Once the data is shared with your doctor, your healthcare team can create a more individualized treatment plan to address your specific needs.

Launched in April 2018 at the CLL Live conference in Niagara Falls, the app has received overwhelmingly positive feedback from both patients and healthcare providers. As of May 2018, we already have 85 patients registered for the app.

Download the Watch & Wait Tracker App

CLL Live Conference

Education is key for patients and their loved ones to be true partners in their treatment. The CLL Live 2018 conference provided participants with an opportunity to hear from leading experts in CLL research and care from Canada and the United States.  

CLL can feel isolating and affect emotional well-being. The conference provides opportunities to network with others facing similar issues and to participate in sessions about the psychological challenges of CLL. 
 
CLL Live 2018 brought together over 224 patients, caregivers, and other supporters, with attendees from Canada, the United States, France, and Lebanon.
View CLL Live Presentations and Panels

Sunnybrook Lymphoma Patient Education Forum

Sunnybrook Lymphoma Patient Education Forum – May 29, Sunnybrook Health Sciences Centre, Toronto

Lymphoma Canada was delighted to participate in the Sunnybrook educational forum, attended by over 130 lymphoma patients and family members. Entitled “Better Understanding Your Lymphoma”, the evening included presentations on both medical and psychosocial topics, by members of the Odette Cancer Centre’s dedicated cancer care team.

Upcoming Events


Lymphoma Canada hosts an array of educational forums, webinars, conferences and special events every year. Dates for our confirmed 2018 events are listed below. Be sure to stay tuned to your inbox and our website to receive the latest news as it is released.
August 15, 2018
Creighton Classic Par for the Cure
Toronto, ON
Lebovic Country Club

REGISTER HERE

September 15, 2018
National Lymphoma Patient Conference - English
Vancouver, BC
Pinnacle Hotel Harbourfront 

REGISTER HERE

October 28, 2018
Montreal, QC
take it to the mat
, the great yoga & meditation revolution


REGISTER HERE
August 25, 2018
Strangers in the Night
Montreal, QC

Borough Hall Pierrefonds Roxboro  

PURCHASE YOUR TICKETS


September 22, 2018
National Lymphoma Patient Conference - French
Quebec City, QC
Hôtel Delta (Marriott) ​

REGISTER HERE


November 4, 2018
Toronto, ON
take it to the mat
, the great yoga & meditation revolution


REGISTER HERE
Lymphoma Canada is delighted to host our 2nd annual National Lymphoma Conferences for patients, families, and caregivers. At these patient-focused educational conferences, participants will learn critical information about diagnosis, treatment, side effect management, and the latest research advances from a panel of leading lymphoma specialists.

Registration is now open for both events.

This year’s English conference will be chaired by Dr. Laurie Sehn in Vancouver, BC on September 15th:
Register For the Vancouver Conference
The French conference, chaired by Dr. Jean-Francois Larouche, will take place on September 22nd in Quebec City.
Register For the Quebec City Conference

Fundraising Spotlight

Jenna's 8th Annual Lemonade Stand

Rhoda Zaracoff, Elise Zaracoff, Jenna Zaracoff, Vaughn City Mayor Maurizio Bevilacqua, Jordyn Zaracoff, Fran Pomerantz 
The Zacaroff family remembers their husband and father, Stewart, by fundraising annually in his memory.

It all began in 2010, when Jenna, age eight, decided to create a lemonade stand. Her goal was to donate the proceeds to Lymphoma Canada and promote awareness as well as advance research for individuals living with lymphoma.

On June 9, 2018, the Zaracoff family held their 8th annual Lemonade stand. Over the years, this event has grown to include entertainment, baked goods, silent auctions, food trucks and much more.  


Since their first lemonade stand, the Zaracoff family has raised over $46,000 for Lymphoma Canada.
 
Thank you Zaracoff family for your support!

eBay and Lymphoma Canada

For the month of May, Lymphoma Canada partnered with eBay. During this time, anyone in Canada who purchased an item through eBay was provided with the opportunity to donate to Lymphoma Canada at check-out. 

Lymphoma Canada also ran an eBay auction in May, featuring a number of donated items to further raise funds. In total over $1,600 was raised.

Strangers in the Night

Strangers in the Night is a unique gourmet gala, that brings together the Montreal community in support of local causes. The gala features over 80 restaurants serving delicious signature dishes, and features headliners Boy George and the Culture Club in addition local artists. This year, Lymphoma Canada has been chosen as one of the beneficiaries.
 
Join us for an incredible evening in support of Lymphoma Canada, lymphoma patients, and their families!
PURCHASE YOUR TICKETS

take it to the mat,
The Great Yoga & Meditation Revolution

This year's take it to the mat event promises to be filled with wholesome food, inspiring speakers and grounding yoga or meditation. Those who attend will enrich their own mind-body connection while supporting those affected by lymphoma. A wonderful community of people will gather together to enhance their well-being at this inspiring and meaningful event. 
Montreal Location - October 28, 2018 
Register for take it to the mat Montreal by July 6th for your chance to win a 3-month pass to Idolem Hot Yoga Chaud.
REGISTER - MONTREAL
Toronto Location - November 4, 2018
REGISTER - TORONTO
Lymphoma Canada operates in both official languages. To update your language preference for future communications, please click HERE
Lymphoma Canada does not receive government funding or funding from the United Way (Centraide). We rely on the generosity of foundations, corporations and most of all people like you for our ongoing support. 
DONATE
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