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Spring 2021 Edition Newsletter

In this issue:

Thank you to our wonderful volunteers!

 
This week marks National Volunteer Week. Lymphoma Canada is celebrating our outstanding volunteers and the incredible contributions they have made.
 
Although this past year has been challenging, our volunteers have continued to support the lymphoma community when it was needed most. Thank you!

Advocacy on behalf of patients relating to the COVID-19 vaccination


COVID-19 has disrupted the Canadian healthcare system, affecting millions of people who require treatment. As research develops, we continue to learn about the risk of COVID-19 in immunocompromised patients, especially for those receiving immunosuppressive treatments. Patients receiving these treatments may be at an increased risk, especially if they are not eligible to receive the vaccine. It is important to discuss your health concerns with your doctor regarding the COVID-19 vaccine.

To address specific issues impacting the lymphoma community related to the COVID-19 vaccine and immunization plans, recommendations were developed by the Lymphoma Canada Scientific Advisory Board and supported by clinicians affiliated with other patient organizations. Learn more about these recommendations and our continued advocacy work.
 
LEARN MORE
For more information on your province/territory’s immunization plan, please visit Lymphoma Canada's COVID-19 Information Hub.

Practice-Changing abstracts in lymphoma and CLL – Updates from ASH 2020  

Lymphoma Management Guidelines during COVID-19 

Lymphoma Canada is currently accepting applications for 2021 research funding

 

CANADIAN RESEARCHERS AND HEALTHCARE PROFESSIONALS ARE INVITED TO APPLY TO LYMPHOMA CANADA’S 2021 RESEARCH GRANTS PROGRAM.
The Lymphoma Canada Research Awards are intended to support small, well-defined research studies that have the potential to effect improvements in healthcare, health systems, or health outcomes for malignant lymphoproliferative diseases.

The deadline to submit your application is fast approaching. Apply by April 23, 2021.
 
LEARN MORE
Par for the Cure

Thursday, June 17, 2021

The Club at Bond Head
Beeton, ON


Gather your foursome for a spectacular round of golf at The Club at Bond Head on Thursday, June 17

This socially distanced tournament will have staggered start times and individual golf carts to ensure your safety. Registrants of Par for the Cure receive welcome gifts, lunch, a great day of golf, and eligibility to win prizes!

Proceeds benefit lymphoma patients and their families, through research, support, advocacy, and education.

REGISTER OR SPONSOR PAR FOR THE CURE 
Classique de golf

Thursday, July 15, 2021


Islesmere Golf Club
Laval, QC


This year marks our inaugural golf tournament in Quebec!

All proceeds support Lymphoma Canada's patient programs as well as our ongoing commitment to fund lymphoma research and advocate for access to effective therapies for lymphoma patients in Canada.
 
Individual carts will be provided, and staggered start times are in effect. 

REGISTER OR SPONSOR CLASSIQUE DE GOLF
Laps Around Lymphoma - Virtual Walk

Laps Around Lymphoma - Virtual Walk
Wednesday, September 15 - Thursday, September 30, 2021


Come September, we challenge you to take 100,000 steps in support of the over 100,000 Canadians currently living with lymphoma. This virtual fundraiser is open to everyone across Canada.

Just connect your Smartphone or another fitness device to our MoveSpring Virtual racetrack and track your steps beginning September 15.

Our top fundraisers and the individuals who complete the most steps are eligible to win prizes.

JOIN THE CHALLENGE!

Past Webinars:

 


Anxiety and Stress Management for Lymphoma Patients

with Dr. Linda Carlson, PhD, R.Psych
Clinical Psychologist, Tom Baker Cancer Centre
Full Professor, Psychosocial Oncology, University of Calgary
Calgary, Alberta

Watch Dr. Carlson's webinar here
 

Lymphoma Research Highlights from ASH 2020

with Dr. Martina Trinkaus
Assistant Professor, University of Toronto
Hematologist, St. Michael’s Hospital
Toronto, Ontario

Watch Dr. Trinkaus's webinar here


COVID-19 Risks, Prevention & Vaccination: Information for People with Lymphoma

with Dr. Lisa Hicks, MD, MSc
Hematologist, St. Michael’s Hospital
Associate Professor, University of Toronto
Associate Scientist in the Li Ka Shing Knowledge Institute
Toronto, Ontario

Watch Dr. Hick's webinar here

      Larry Simpson

Larry Simpson is President of PONIES 24-7 Inc., a media company that includes ‘Ponies 24-7, THE RADIO MAGAZINE Show, heard Saturday mornings at 8:30 ET, on 105.9 The Region and a bi-monthly digital magazine. Recently, Larry was diagnosed with lymphoma and after some research, soon discovered that the disease can also affect horses, which immediately became the brainchild behind a natural fundraising and promotional tie, between the two media properties and Lymphoma Canada.

In January of this year, PONIES 24-7 partnered with Lymphoma Canada and together they launched ‘Don’t Horse Around with Lymphoma, again a nod to the fact that lymphoma can touch both humans and horses. Thus far, the campaign has consisted of magazine advertorials in the PONIES 24-7 magazine and 30-second radio spots and show ‘shut outs’, while utilizing both PONIES 24-7 media properties. These advertisements are intended to encourage Canadians to learn the signs and symptoms of lymphoma and the campaign itself, is expected to help raise awareness and much needed funds for patient resources, including comprehensive patient subtype manuals, educational forums, webinars, and national conferences.
 
Thank you, Larry Simpson and PONIES 24-7, for organizing such an amazing fundraiser and thanks also to everyone who has supported the ‘Don’t Horse Around with Lymphoma’ Campaign to date, including 105.9 The Region!
Host a fundraiser for Lymphoma Canada to raise awareness and support for those affected by lymphoma. Your gifts provide reliable Canadian lymphoma and CLL resources free of charge for patients and caregivers.

Click here for more information on how to host your own event in support of Lymphoma Canada.
PATIENT SURVEYS

Lymphoma Canada is preparing three separate submissions for the 
pan­Canadian Oncology Drug Review (pCODR) and the Quebec equivalent Institut national d'excellence en santé et services sociaux (INESSS). 

These surveys help to provide patient input required for submissions. This information will be used by pCODR and INESSS to help make recommendations to the provinces and territories regarding funding for new cancer drugs.

BY COMPLETING OUR SURVEYS, YOU ARE PART OF THE PROCESS THAT MAY HELP PATIENTS GAIN ACCESS TO THESE TREATMENTS IN CANADA.

Please consider completing any applicable surveys below:


Patients with Waldenstrom Macroglobulinemia

who have received Zanubrutinib or treatment with another BTK inhibitor such as Ibrutinib
Deadline to complete: Friday, May 7, 2021

TAKE SURVEY

 


Patients with Graft-versus-Host Disease from your Stem-Cell Transplant

who have received Ruxolitinib as a treatment
Deadline to complete: Friday, May 14, 2021

TAKE SURVEY


 

Patients with Mycosis Fungoides or Sezary Syndrome

who have received Mogamulizumab
Deadline to complete: Friday, May 21, 2021

TAKE SURVEY
 
The sharing of experiences can be cathartic, educational, and inspiring for lymphoma patients. At Lymphoma Canada, we hear often from patients that having an opportunity to share their own stories and hearing from others, is an important part of going through the lymphoma experience. While no patient’s situation is the same, there is always something to be gleaned from hearing someone’s thoughts and reflections on how they experienced the challenges of lymphoma, whether it be during diagnosis, treatment, relapse, or any other aspect of survivorship.
SHARE YOUR STORY

DONATE

At Lymphoma Canada, we rely on the generosity of foundations, corporations, and most of all, people like you, for ongoing support.

Please donate today.
DONATE

RESOURCES

Lymphoma Canada provides education material free of charge for lymphoma patients, their families and their support systems. You can download all of these resources from our website.
RESOURCES

VOLUNTEER

Lymphoma Canada is always seeking active & passionate volunteers to join our network. Visit our website for our list of current volunteer opportunities, including Peer Mentors.
VOLUNTEER


6860 Century Avenue,
Suite 202
Mississauga, ON
L5N 2W5

1.866.659.5556
905.858.5967
 
 
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