NEWSLETTERS - The Huntington's Disease News
By AICH - Roma Onlus
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Newsletters 19 Dic  2016
Huntington's disease news
Dic 14,  2016
The UCL Huntington’s Disease Centre

A Huntington’s Disease Centre has been established at University College London and will officially open in March 2017. It is directed by Professor Sarah Tabrizi and co-directed by Professor Gillian Bates, who has recently been recruited to UCL. Professor Tabrizi and Professor Bates will be working alongside Dr Ed Wild, a Principal Investigator in the Centre with a research group supported by an MRC Clinician Scientist Fellowship and CHDI Foundation.


Dic. 14  2016
HDSA Research Report 2016

Some years are less about headlines and more about steady progress towards goals. 2016 was clearly one of those years. As our work to support new therapies and curative treatments for Huntington’s disease continues, 


Dic 17, 2016
Pfizer has announced that the first-pass analysis of its ‘Amaryllis’ trial, testing a PDE-10 inhibitor drug, shows the drug did not meet its target of improving Huntington’s disease symptoms. As a result, the open-label extension study will be stopped. This is not the news we’d been hoping for, but we’ve learned a lot about HD along the way.
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Dic 12, 2016
The European Huntington’s Disease Network in collaboration with the International Parkinson and Movement Disorder Society- European Section (MDS-ES) is launching a joint Fellowship Exchange Programme in Huntington’s Disease (HD-FEP) offering ninefellowships in 2017.
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Dic 7, 2016
Tufts University researchers have discovered a possible explanation for the occurrence of a genetic error that causes over a dozen neuromuscular and neurodegenerative disorders, including Huntington’s disease, myotonic dystrophy and forms of spinocerebellar ataxia
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Nov 30, 2016
Researchers have discovered that mice with Huntington’s disease (HD) suffer defects in muscle maturation that may explain some symptoms of the disorder. The study, “Progressive Cl channel defects reveal disrupted skeletal muscle maturation in R6/2 Huntington’s mice,” which will be published online November 29 in The Journal of General Physiology
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Nov 22, 2016
In Huntington’s disease (HD), the huntingtin gene is mutated, causing progressive neuronal death. This leads to defects in movement, behavior, and cognitive ability. Apoptosis, autophagy, and..
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Nov 22, 2016
We proudly present the new public face of EHDN. The EHDN webpage ( that is launching today, Tuesday November 22st 2016. We invite you to visit the webpage and get information based on your individual background.
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