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**The FASD Caregiver Training is going virtual. Stay tuned for upcoming dates!

A Common Definition of FASD

FASD stands for Fetal Alcohol Spectrum Disorder. It is a lifelong disability that affects the brain and body of people who were exposed to alcohol in the womb. Each person with FASD has both strengths and challenges and will need special supports to help them succeed with many different parts of their daily lives. (CanFASD)

Learn why it's important to use a standard definition as researchers, policy makers, and service providers.

Position Paper- Towards a Common Definition of FASD
Check out the collection of COVID-19 specific resources. Included are social stories, tips for caregivers and local resources. Updated regularly.
A Collection of COVID-19 Resources for Individuals and Caregivers.
Families Facing COVID-19

A study to find out how the pandemic has impacted the lives of neurodiverse individuals and their families.

The COVID-19 pandemic is an unprecedented global crisis that has changed our daily way of life. The aim of this study is to understand the impact of COVID-19 on the lives of neurodiverse individuals and their families, who are already vulnerable to stress and mental health concerns.

If you are a family living with FASD click here to learn more about participating.

 


FASD Ontario offers a registry of online and in-person training
www.fasdinfotsaf.ca/en/get-training/


 

 

In 2015, at the request of the Family Advisory Council, the Canada FASD Research Network began to question medications. As many of you have no doubt experienced, individuals were being prescribed medications without any knowledge of the effectiveness or side effects for an individual with prenatal alcohol exposure.

Doctors by their very nature, want to help. They want to provide medication if it is safe and if it is helpful. So, Dr. Mansfield Mela began to assemble an International panel of experts to discuss FASD and medications.

They realized individuals with FASD were being prescribed medication at 2 – 3 x the rate as the general population – so they spent the next two years pouring over all the published information and sharing their experiences in order to create a step by step approach to assist clinicians.


www.fasdsuccess.com/FASD-Medication-Algorithm


During this video, you will learn:
  • What exactly is a medication algorithm and what can it do?
  • Who is Dr. Mela and how did he and his panel develop this algorithm?
  • Why, despite putting together a medication algorithm, does he say: “Medication is not the answer. It is an adjunct.”
  • How environmental influences play a part in treatment plans.
(Excerpt, FASD Success- Noble Initiatives)

Life Beyond Trauma: 1-on-1 e-NET for Parents of
Neurodiverse Children

Life Beyond Trauma is offering FREE 1-on-1 e-Net Trauma Therapy using Narrative Exposure Therapy (NET) for Caregivers who have experienced multiple traumas.

Goals:
  • Improve the well-being of parents and their families
  • Raise awareness on the consequences of Posttraumatic Stress Injury in parents
  • Make mental health care more accessible and affordable for parents
  • Examine the satisfaction and effectiveness of the program for parents
  • Implement the program on a permanent basis across Canada
Learn more about this program here.
 
FASD: Healthy Relationships and Sexuality

A very common question from parents and caregivers is, "How do I discuss healthy relationships and sexuality with my child"?

FASD Waterloo Region has compiled a number of resources that can be helpful to start and guide the conversation.

Click on this link to take you to a list of curated resources.
Now is the time to start thinking about the transition back to school- whether in person or virtually. Ensuring that educators have the best information about a child with FASD sets the child up for success. In the link below there are resources that can be helpful in communicating a child's unique strengths and needs with their new school team.
School Transition Resources
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1121 Victoria Street North
Kitchener, ON
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Developmental Services Resource Centre · 205-1120 Victoria Street North · Kitchener, ON N2B 3T2 · Canada

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