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CCSN May 2014 Eletter

The Canadian Cancer Survivor Network (CCSN) works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.
June 4th webinar: understanding your health insurance at work!
The Canadian Cancer Survivor Network (CCSN) is offering a series of webinars designed to give you information to build your knowledge about important issues facing patients and caregivers.
 
Our next webinar is entitled “Understanding your health insurance at work”. The webinar will be co-hosted by Bill Dempster of 3Sixty Public Affairs and Suzanne Lepage from Suzanne Lepage Consulting.  The webinar will provide insight into the following aspects of work health insurance for medications, and be followed by an interactive question and answer session:
  • Overview of the structure and operation of Canada’s private drug plan marketplace, including the important distinctions and/or overlaps between private (insurance) and public (government) providers
  • Explanation of the role and place of medication coverage within the supplemental health benefits plans of life and health insurance companies which provide pharmaceutical coverage
  • Identification of the various providers and influencers which contribute to private formulary (lists of drugs which are covered) decision-making and their roles in the system
  • Understanding generally what gets covered, by which plans and under what circumstances and which medications are typically subject to restrictions
  • Guidance on how to determine which medications are covered
  • Exploration of how patients and caregivers can navigate through the complex private plan system including: 
    • Who should provide answers regarding coverage and eligibility?
    • What you can do if you run into coverage restrictions/rejections?
    • How should patients interact with the private payer community generally?
    • What are some of the current obstacles/barriers for successful patient involvement in drug plan decision-making, and what are the strategies/approaches to address them?
Bill Dempster, co-founder of 3Sixty Public Affairs Inc., is a seasoned health and pharmaceutical policy expert who works with a range of clients to navigate complex political, policy, regulatory and reimbursement challenges.
Suzanne Lepage is a private health plan strategist who offers a deep understanding of the pharmaceutical and group benefits sectors to help her clients comprehend, navigate and develop effective strategies for dealing with the private health plan marketplace.
How to register:
The webinar is being held on Wednesday, June 4, 2014 at 1PM EST. To participate, you will need to register by clicking the registration button below and filling out the form. CCSN will then email you the link for participating in the webinar and login instructions.
Click HERE to register for the webinar!
Sometimes, it's more than just a coffee!
The courage and determination of cancer survivors is an inspiration to us all. National Cancer Survivors Day is June 1st, and during the first two weeks of June, the Canadian Cancer Survivor Network (CCSN) will honour survivors who are living with and beyond cancer.

Join in and help celebrate life by holding a Coffee Party with a Purpose, to support cancer survivor services, awareness, and programs.
It’s simple.  
Just put on a pot – or three! – of coffee or tea, invite colleagues and friends to join you, ask guests to put in a toonie (or more), and you’re done!
Get started now. 
Fill out the registration form linked below, and we will send promotional materials for your bulletin board & newsletter, and more ideas for a fun coffee break.
Take time to honour a cancer survivor
Participating companies should email their logo to participate@survivornet.ca for recognition on CCSN’s website, www.survivornet.ca.
June 1, 2014 is National Cancer Survivors Day. On that day, and during the following two weeks, the Canadian Cancer Survivor Network (CCSN) will honour the strength and courage of cancer survivors with Coffee Party with a Purpose, a fundraising event designed to raise awareness of CCSN’s mission of supporting cancer survivors and working to improve their quality of life.

CCSN invites individuals and corporations across the country to hold a Coffee Party with a Purpose in their own offices or in their own homes. By simply putting on a pot of coffee or tea and inviting friends or colleagues to join and make a small donation to the cause, Canadians can help support those who, from the moment of diagnosis through the remainder of life, inspire others to think about and better understand the cancer journey.

“Surviving cancer is more than just living. It’s an attitude about life and living each day to the fullest,” says CCSN Board Member Mona Forrest, Coffee Party with a Purpose organizer for CCSN. You will find our community’s Coffee Party events filled with joy, camaraderie, hope, compassion, faith, and love as we honor cancer survivors for their strength and courage. We will also recognize the contributions of their families, friends, and healthcare providers and discuss the issues faced by cancer survivors today.”

Canadian Cancer Statistics 2013 tell us that at the beginning of 2009, there were about 838,724 Canadians living with and beyond a cancer that had been diagnosed in the previous 10 years. Major advances in cancer prevention, early detection, and treatment have resulted in longer survival, and therefore, a growing number of cancer survivors. However, a cancer diagnosis can leave a host of problems in its wake. Physical, financial, and emotional hardships often persist after diagnosis and treatment. Survivors may face many challenges, such as limited access to cancer specialists and promising new treatments, inadequate or no insurance, financial hardships, difficulty finding employment, psychosocial struggles, and a lack of understanding from family and friends.

“Despite these challenges, cancer survivors live full, productive lives and serve as an inspiration to all of us,” says Mona.

Help the Canadian Cancer Survivor Network increase its services to cancer patients, survivors and caregivers! Register your organization below and help us recognize National Cancer Survivors Day this year!
Click HERE to register to host a Coffee Party with a Purpose!
Oncology on Canvas launches in Canada!
Jackie Manthorne, CCSN President & CEO and Joan L. Bottoroff, President of the Canadian Association of Psychosocial Oncology at the launch of Oncology on Canvas in Winnipeg on May 2nd.
Some see art. Others see hope. What do you see?

“You have cancer.” To an estimated 500 Canadians a day, their family, friends and caregivers, these three words change lives. To help Canadians manage through a cancer diagnosis, Eli Lilly Canada is launching Lilly Oncology On Canvas Canada, an art competition that honours the physical and emotional journeys Canadians face when dealing with cancer.
 
“A cancer diagnosis can be just as emotional as it is physical,” says Dr. Joan Bottorff from the Canadian Association of Psychosocial Oncology. “It’s so important to provide opportunities for people who have been touched by cancer to share their feelings. It can really make a meaningful difference in someone’s ability to understand and deal with the realities of a cancer diagnosis.”
 
Individuals who are, or have been diagnosed, with any type of cancer — as well as their families, friends, caregivers and healthcare providers — are invited to express the life-affirming changes that give their cancer journeys meaning through art and narrative. The deadline for entries is September 30, 2014. Additional information about the competition, including how to enter, can be found at www.lillyocc.com.
 
“Cancer survivors and those close to them have powerful stories to tell,” says Jackie Manthorne, president and CEO of the Canadian Cancer Survivor Network. “We’re thrilled to be part of an initiative that can bring inspiration and understanding to so many through the power of art.”
The Lilly Oncology On Canvas Canada art competition is presented by Lilly Canada’s Oncology team, the Canadian Association of Psychosocial Oncology (CAPO) and the Canadian Cancer Survivor Network (CCSN). Oncology On Canvas was launched in 2004 by Lilly Oncology to help those affected by cancer cope with the emotional side of the disease. Winners’ prizes consist of donations made to the cancer charities of their choice.
 
“In the United States, this competition has been helping people living with cancer and their supporters for ten years,” says Nathan Hubbard, Eli Lilly Canada Oncology Business Unit lead. 
“We’re excited to bring this competition to Canada for the first time and provide an opportunity for Canadians to share their journeys and draw from others who share their stories with us.”
 
Entries will be shared online at www.lillyocc.com as well as on Twitter and Pinterest.
 
More about the Lilly Oncology On Canvas Canada art competition
 
The Lilly Oncology On Canvas Canada art competition is open to residents of Canada who have reached the age of majority in their province or territory of residence as of September 30, 2014. Entrants must select the category that best describes their cancer journey - person diagnosed with cancer; family member, friend or caregiver; and healthcare professional – and the type of original artwork they are submitting: painting (acrylic, watercolor, oil, pastel), photography, or mixed media (a combination of two or more media). Artwork must be accompanied by a narrative of 125 words or less.
 
Winners in 15 categories will be chosen by an independent panel of judges selected by CAPO and CCSN.
 
Prizes consist of donations to cancer-related charities selected by the winners, ranging from $250 to $2000.
 
For further information about Lilly Oncology On Canvas Canada visit www.lillyocc.com. You may also call 416-515-7517 ext. 350 or e-mail lillyocc@thornleyfallis.com.
 
Follow Lilly Oncology On Canvas Canada on:
Twitter (twitter.com/lillyocc)
Pinterest (pinterest.com/lillyocc)
Check out this video on how drugs are approved in Canada!
This six-minute video will provide you with a concise, clear description of the complex drug approval process in Canada, from the development of a new drug and subsequent clinical trials to approval first by Health Canada and then other national and provincial bodies.
 
Click here to watch the video!
CCSN president & CEO Jackie Manthorne's presentation at the 2014 CAPO conference!
Jackie Manthorne, President & CEO of CCSN, attended and was invited to make a presentation at the 2014 conference of the Canadian Association of Psychosocial Oncology in Winnipeg, April 30-May 2. The 2014 conference brought together interdisciplinary professionals to explore, share, learn and discuss the psychosocial aspects of cancer. CAPO’s annual conference convenes researchers, clinicians and community-based organizations from several professions, including: medical, psychiatry, nursing, psychology, social work, spiritual care, nutrition, rehabilitation medicine, occupational health and radiation oncology as well as representatives of community organizations and patient groups.

Manthorne’s presentation was entitled Issues impacting cancer survivors: Results of CCSN’s Survey. This survey, conducted in June 2013, asked CCSN’s membership about patient 
experiences with Canada’s healthcare system during and following treatment, and cancer survivorship issues.

The Survey was completed by 128 patients, survivors and caregivers diagnosed with a variety of cancers. Issues identified were divided into five main categories:
  • Post-treatment issues
  • Psychological/mental health issues
  • Changes to the family dynamic
  • Difficulties transitioning back to work
  • Financial issues
Please click HERE to access the presentation.
Follow us on our social media pages!

Twitter
@survivornetca - our main twitter account of information, news and resources on all cancers
@bestbreastnews - contains information on breast health and breast cancer
@prostatepost - news, events and resources on prostate cancer
@canadianmeso - details on asbestos and mesothelioma
@CanadaCINV - is about chemo-induced nausea and vomiting

 

Facebook
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Pages dedicated to asbestos and mesothelioma and prostate cancer!

 

Pinterest
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Blog
Follow our main blog: Jackie Manthorne's Cancer Blog
Follow our blog focused on asbestos and mesothelioma: Canadian Meso Blog


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