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Hello brainXchange Members,
We are excited to share with you some updates and knowledge exchange opportunities:  

Primary Care Symposium 

In June 2014, the brainXchange worked with the Alzheimer Society of Ontario, the Ontario College of Family Physicians and other stakeholders to hold an event called People, Partners & Possibilities. The purpose of this symposium was to explore and begin to answer the question “What must we do to increase primary care’s capacity to respond effectively to the needs of community-dwelling people living with dementia and their care partners along their journey?”  50 people living with dementia, family members, primary care and other service providers, researchers and others came together to roll-up their sleeves and through discussion with each other, better understand the needs and challenges, identify opportunities and develop solutions to this question. 

Six key topics for discussion were identified: early identification and diagnosis; whole person needs; accessibility; collaboration; defining the role of primary care providers; and primary care training.

Out of the discussions on each of these topics, 3 focus areas for moving forward emerged: increased coordination; early identification and diagnosis of cognitive impairment; and a person-centered approach.

For a full report from this event or to learn more about the next steps visit: www.brainXchange.ca/primarycare

 

Taking Control of Our Lives: A Self-management program for people living with dementia

The brainXchange and Alzheimer Society of Ontario have been working with Dr. Elaine Wiersma of Lakehead University’s Centre for Education and Research in Health and Aging on a CIHR funded research project to developing a self-management education program for people living with dementia.

The experiences and perspectives of people living with dementia who have been involved at all levels and stages of the project, have driven the creation of this 8-week education program that is being piloted in 3 sites in partnership with local Alzheimer Societies:

  • Guelph, Ontario (Sept. – Nov. 2014)
  • Thunder Bay, Ontario (Oct. – Dec. 2014)
  • Vancouver, British Columbia (Jan. – Mar. 2015)

Early findings from focus groups with participants of the program are very promising, pointing to the positive impact for both people living with dementia and care partners who attend.

Through this project, much is being learned about how to meaningfully engage people living with dementia in the research process, the development of services or programs and in the learning process itself. As findings from this work are pulled together we will bring them back to share with the brainXchange network and others. For more information on this project, contact Kathy Hickman.

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*In the news section is brought to you in partnership with the Murray Alzheimer Research and Education Program