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Hello brainXchange members,
We are excited to share with you some updates and knowledge exchange opportunities:

Maintaining the Connection Video

Maintaining the Connection a whiteboard animation video providing evidence-based strategies for communicating with a family member with Alzheimer’s disease. This was created by Dr. Susan Lane and was designed as a solution to her own struggle to communicate effectively with a family member with Alzheimer’s disease. The strategies are derived from Dr. Jeff Small and Dr. Jo Ann Perry’s research article, Training family care partners to communicate effectively with persons with Alzheimer’s disease: The TRACED program.
While planning this project, she encountered an abundance of generosity, yielding a collaboration of donated services. Many thanks to: Gordon Pinsent, Braedon Garret, Peter Keleghan, Erica Bota, Disa Kauk, David Schmidt, Robin Frigeri, Dr. Jo-Anne Clarke, Dr. J.B. Orange, Dr. Adam Day, The College of Family Physicians of Canada Research and Education Foundation, the Alzheimer’s Society of Ontario and the North East Specialized Geriatric Centre. Many thanks to Dr. Jeff Small and Dr. Jo Ann Perry for their research.
Please feel free to share this video. Many thanks to you for helping those with Alzheimer’s disease. Because we care and they need us to care.

Ontario Best Practice Exchange Collaboratives

We are pleased to announce that the 3 Accelerated Ontario Best Practice Exchange Collaboratives are now well under way!
Each collaborative has held at least two all-member meetings before taking a bit of a break over the summer months Despite the heat and varied vacation schedules, productivity has not slowed. Here is what the collaboratives have each been up to:
Behavioural Support Transition Units (BSTU) – co-chaired by Mary Ellen Parker and Karin Adlhoch.  The BSTU collaborative members have recently created a BSTU environmental scan for the province.  Each BSTU across Ontario has / will be invited to fill in the document, detailing (among other criteria): # of Beds in the BSTU, Top 3 Referral Sources, Admission Criteria, Average Clinical Length of Stay (LOS) and External Partners and/or Transition Support. The intent is that once complete, each BSTU across the province will have access to the information about their BSTU counterparts – allowing for a better understanding of what is happening elsewhere and fostering new innovative approaches.
Substance Use & Geriatric Addictions Collaborative – co-chaired by Marilyn White Campbell, Jane McKinnon and Cathy Sturdy-Smith.  Working with the CMHA Waterloo Wellington Dufferin, St. Joseph’s Health Centre Guelph and Community Outreach Programs specializing in addictions, this collaborative has introduced the provincial monthly Geriatric Addiction Rounds to healthcare professionals across sectors, but have also created an archived list of past Addiction Rounds for those not able to attend them live.
Behavioural Supports Integrated Teams Collaborative (BSIT) – co-chaired by Teresa Judd and Patti Reed.  The BSIT collaborative has focused its attention on finalizing a Terms of Reference for the group, which is now complete.  Additionally the co-chairs, with input from others in the collaborative have been working on a discussion paper, which aligned with BSO’s 3 pillars and other relevant provincial initiatives, offers a concept design for how integrated teams can work across transitions (both physical transitions of moving between locations and sectors and the progression of the disease process) and how teams can support teams to ensure continuity of care.  Currently select members of the collaborative are reviewing this paper prior to it being released for broader circulation.
For more information, please contact Jillian McConnell

Think Tank on Stigmatizing Language

On Tuesday July 26th, Alzheimer Society of Ontario partnered with brainXchange to host a think tank to discuss the use of stigmatizing language to describe behaviours associated with dementia and start the conversation about how we can better communicate using non-stigmatizing language. Stigmatizing language and negative communication tends to be used in response to behaviours associated with dementia, which increases focus on the illness while reducing the person with dementia to a series of labels and symptoms. This was an excellent opportunity to bring together researchers, clinicians, and persons from the community to consider this very important issue. Bringing together 20 people with a shared interest in this topic was all it took to get some excellent and constructive conversation started. An event like this is an excellent first step towards changing the current state of communication and dementia. Learn more
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