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March 31, 2022
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Pennsylvania News



ODP Announces Public Comment Period for the Proposed Adult Autism Waiver Renewal

The Office of Developmental Programs has opened a 30-day public comment period opened for their proposed amendment to the Adult Autism Waiver. The comment period will close on April 11, 2022. 

Comments should be addressed to Laura Cipriani, Department of Human Services, Office of Developmental Programs, 625 Forster Street, Room 510, Harrisburg, PA 17120. Comments may also be submitted to ODP at RA-odpcomment@pa.gov using subject header “AAW Amendment Comments.”

Record of Change for the Proposed Amendment to the Adult Autism Waiver

Proposed Amendment for the Adult Autism Waiver
 


New Visual Gestural Communication Module: Getting Started

ODP is happy to announce the publication of the next online Visual Gestural Communication (VGC) training module! Over 8,000 individuals supported in the ODP system have VGC listed as their primary mode of communication.

The first two modules previously published went over the basics of VGC and Visual Schedules. The next module will be a guide to Getting Started with VGC. To take this module, you will first need to complete ‘Prerequisite: The Basics’.

These modules can be found on MyODP.org under Trainings > Special Populations > Non-traditional Communication.
 



2022 ASD Virtual Seminar

The 2022 ASD Virtual Seminar series, Positive Behavioral Supports: Meaningful, Everyday Application, begins on April 6th. There is still time to register. 

Read more here
 



Disability in the News


US Department of Justice Issues Web Accessibility Guidance Under the Americans with Disabilities Act

The Department of Justice recently published guidance on web accessibility and the Americans with Disabilities Act (ADA). It explains how state and local governments (entities covered by ADA Title II) and businesses open to the public (entities covered by ADA Title III) can make sure their websites are accessible to people with disabilities in line with the ADA’s requirements. 

Read article here

Congress Passes Omnibus Spending Bill
 
President Biden signed an omnibus spending bill funding all of the federal government’s discretionary programs through the end of the fiscal year. The bill included a few notable increases, including: Lifespan Respite Care Act (14%), Special Olympics Education Program (30%), Parent Information Centers (10%), and Social Security Administrative Budget (10%).

For more information of a comparison of disability-related funding program funding levels, click here
 

Education Department Launches Historic Real Pay for Real Jobs Initiative for People with Disabilities  

"The U.S. Department of Education’s Rehabilitation Services Administration (RSA) released the notice inviting applications for the Subminimum Wage to Competitive Integrated Employment (SWTCIE) demonstration project, aimed at increasing access for people with disabilities to jobs that pay good wages.  

The SWTCIE project is the largest discretionary grant administered by RSA, with $167 million available to State Vocational Rehabilitation agencies and their partners."

Read the press release here
 

Bill Introduced to Provide Access to Training for Family Members of Children With Disabilities
 
Representatives Grace Meng (D-NY), Mike Doyle (D-PA), and Brian Fitzpatrick (R-PA) introduced the Autism Family Caregivers Act of 2022 (H.R.6783). This bill would provide access to caregiver skills training for family members who care for children with autism spectrum disorder or other developmental disabilities or delays. 

Read more here

U.S. Department of Transportation Announces Proposed Rule to Improve Accessibility of Lavatories on Single-Aisle Aircraft

"The U.S. Department of Transportation (DOT) announced that it is publishing a Notice of Proposed Rulemaking (NPRM) that would improve the accessibility of lavatories for people with disabilities traveling on new single-aisle aircraft."

The proposed rule would apply to new aircraft ordered 18 years after the effective date of the final rule or delivered 20 years after the effective date of the final rule. It is the result of a 2016 negotiated rulemaking that was produced through a consensus among a cross-section of stakeholders, including disability organizations such as Paralyzed Veterans of America and the National Disability Rights Network; the Association of Flight Attendants; Airbus; and airlines. However, given this long timeframe and in recognition of the affirmative responsibility of the federal government to advance equity, civil rights and equal opportunity for all individuals, DOT is seeking comment on whether these accessibility improvements could be implemented more quickly than proposed. Based on the comments it receives, DOT may adjust the implementation timeline as part of the final rule.

DOT encourages members of the public and interested parties to submit comments on the NRPM. View the notice and request for comment in the Federal Register. The NPRM can also be found at on the DOT website and at regulations.gov , docket number DOT-OST-2021-0137.

Read more here


Amygdala Overgrowth that Occurs in Autism Spectrum Disorder May Begin During Infancy

"The study included 408 infants, 270 of whom were at higher likelihood of ASD because they had an older sibling with ASD, 109 typically developing infants, and 29 infants with Fragile X syndrome, an inherited form of developmental and intellectual disability. "

Read article here


Susan Tachau, Co-Founder and CEO of RCPA Member PATF, to Transition to a New Role in September 2022

"In September of this year, Susan Tachau will be stepping down as CEO of PATF. In her new role as PATF’s Innovation Officer, Susan will work on special projects and advocacy activities."

Read more here


Stalicla Completes Phase 1B Trials into Precision Medicine for Autism Spectrum Disorder

"Swiss clinical stage biotech company, Stalicla, has announced the highly successful completion of phase 1b trials for its lead drug candidate, STP1."

Read more here

 

ANNOUNCEMENTS/COMMUNICATIONS FROM
 
PA Office of Developmental Programs

 
 
American Rescue Plan Act (ARPA):Supplemental Payment to Address Staff Training, Credentialing, and Business Associates Programs for Employment Q&A

ODP Announcement 22-032: Office of Developmental Programs (ODP) Quality Management (QM) Virtual Certification Classes: Registration Now Open for July - December 2022

Positive Practices Quarterly Meeting - April 14, 2022 - Embracing Behavioral Supports and Meaningful Applications

ODP Announcement 22-033: Announcing Infection Prevention Specialist Partnership with Health Care Quality Units

New Visual Gestural Communication Module: Getting Started

American Rescue Plan Act (ARPA) Webinar Rescheduled Monday April 4 2022

Office of Developmental Programs Health Alert - Respirator Recall

New "A Supporter's Toolbox" -- Stay on Track By Setting Goals

ODP Announcement 22-015: COVID Update--Now Available Version 3 of the Operational Guide for the Adult Autism Waiver During the Federal COVID-19 Public Health Emergency

ODP Announcement 22-035:Update on ODP’s Expectation for Resuming In-Person Individual Monitoring Conducted by Supports Coordinators 

ODP Announcement 22-034: Adult Autism Waiver (AAW) Amendment Approved by the Centers for Medicare and Medicaid Services (CMS)
Legislative Updates from Katie Yost 

 

  • No Legislative Updates at this time. 
 "Learn More"

 

Trainings/Workshops

 

Supplemental Payment to Address Staff Training, Credentialing, and Business Associates Programs for Employment Q&A - Webinar
April 4, 2022 from 1:00 PM - 1:30 PM

Join ODP Deputy Secretary Kristin Ahrens and Bureau Director of Policy & Quality Management Jeremy Yale to discuss  the recent announcement about the ODP American Rescue Plan Act (ARPA) One-Time Supplemental Payment to Address Staff Training, Credentialing, and Business Associates Programs for Employment. 

Register Here
 

PA Family Network's Sibling Good Life Group Workshop
April 4, 2022 at 6:30 PM


This group of adult siblings will have the opportunity guide the group's direction, network with other siblings, talk about your lived experience, hear from experts on topics relevant to sibling life, have open and informative discussions, and plan for a future that holds true potential for you and your family.

Join the Zoom Meeting HERE
Meeting ID: 810 8412 7996
Passcode: 801075
One tap mobile: 1-646-558-8656

 

PA Family Network's Safety in the Community Workshop
April 5, 2022 from 6:00 PM - 8:00 PM


Join PA Family Network Advisors as we plan and problem solve for the safety of your loved one with intellectual disabilities and/or autism by:
  • sharing practical skills and strategies for safety at home, work, and in the community;
  • identifying possible ways to apply LifeCourse Framework and Tools in useful, flexible, and simple ways; and
  • supporting each other by discussing steps toward a vision for remaining safe within our community while living a meaningful and good life.
Join the Zoom Meeting HERE
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: 1-646-558-8656

 

PA Family Network's Advanced Waiver Workshops - Zoom 
The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network Advisors in this 2-part workshop which will expand in more detail what was presented in the Waiver Basics (101) Workshops and how waivers can support your loved one:

Advanced Waiver Workshop Part 1
April 6, 2022 from 10:00 AM - 12:00 PM

  • Expand upon Service Definitions discussed in Waiver Basics (101 Part 2)
  • Learn more about the various services defined under waivers and some of their limits, requirements and options

Advanced Waiver Workshop Part 2
April 6, 2022 from 1:00 PM - 3:00 PM
  • Guide participants on researching waivers, utilizing resources and understanding your rights and responsibilities
  • Discussion of the various waiver document Appendices, Due Process, Fair Hearing and More


Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799



ACRE Basic Certification Training - via Zoom
April 11 - 13, 2022 from 9:00 AM - 12:00 PM and 1:00 PM - 3:30 PM


The Arc of Pennsylvania’s Making Employment Work course is an ACRE Basic Certification Training. To receive certification, participants must attend a 3-day, live webinar training and then complete a self-paced, online curriculum. Completing this certification course will qualify individuals to provide Supported Employment services with Pennsylvania’s Office of Vocational Rehabilitation and Office of Developmental Programs. Our training combines lessons learned from traditional Supported Employment and Customized Employment techniques.

Register Here. 
 

PA Family Network's Waiver Basics 101 Workshops for Siblings
The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network in this 2-part workshop to learn how waivers can support your loved one:

Waiver Basics 101 - Part 1
April 11, 2022 from 6:00 PM - 8:00 PM


Target Audience: Siblings with individuals just entering the system

  • Address the importance of having a vision of your loved one’s needs to live a good life
  • Basic information of how to register, apply and access waiver services

Waiver Basics 101 - Part 2
April 12, 2022 from 6:00 PM - 8:00 PM


Target Audience: Siblings who are interested in services a waiver can provide
  • Individual Services Plan (ISP) Basics
  • Overview of waiver services
Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799

 

Charting The Lifecourse Showcase
April 13 - 14, 2022

The national Charting the Lifecourse (CtCL) Nexus will be hosting its sixth annual showcase on April 13 and 14, 2022. The event will take place in Kansas City, Missouri and a virtual attendance option is available. The CtLC Showcase is for people who use the framework to enhance person-centered practices in multiple roles and specialties.

Several tracks are available for different audiences including:

  • Self-Advocacy and Family Leadership
  • Education
  • Employment and Meaningful Day
  • Person Centered Planning
  • Front Door Supports
  • Direct Service Providers

The Charting the Lifecourse Nexus encourages you to be a part of the ever-expanding network of advocates, family leaders, professionals, and influencers in celebrating all our achievements in supporting person-centered practices for all people.

Register here

 

PA Family Network's Using the Lifecourse Framework for Transition
April 14, 2022 from 6:00 PM - 8:00 PM

What happens when the bus stops coming? Do you need a Vision and Plan? Join PA Family Network Advisors for an interactive workshop to:
  • Discuss thought-provoking questions surrounding a new day to day plan;
  • Obtain information and resources to be used during this time of change;
  • Address questions and concerns specific to Transition Age;
  • Utilize the LifeCourse Framework and Tools in useful, flexible, and simple ways.
Become empowered to have conversations about reaching dreams and finding purpose after high school.

Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799

 

PA Family Network's L.E.A.D. the Way to Healthy Relationships Workshop
April 18, 2022 from 6:00 PM - 8:00 PM


Join PA Family Network Advisors as we plan and problem solve for your loved one with intellectual disabilities and/or autism to have successful relationships by:

  • identifying possible ways to apply LifeCourse Framework and Tools in useful, flexible, and simple ways;
  • discussing strategies on how to define a friend and establish appropriate boundaries in relationships;
  • introducing consent and sharing steps to help mitigate their risk of being taken advantage of;
  • suggesting information to adapt our loved one’s level of understanding and ideas for application in real life.
Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799


The Arc of PA's Intentional Teaching - The Essential Elements of Systematic Instruction for Teaching Job Skills 
April 20, 2022 from 9:00 AM - 4:00 PM


Intentional Teaching is a set of data-driven strategies used to teach essential job skills that can be adapted to individuals of all abilities and learning styles. Attendees will participate in a single day of online training to learn:
  • Systematic Instruction Strategies 
  • Descriptive Notetaking in Data Collection 
Register Here
 
 

PA Family Network's Advanced Waiver Workshops - Zoom 
The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network Advisors in this 2-part workshop which will expand in more detail what was presented in the Waiver Basics (101) Workshops and how waivers can support your loved one:

Advanced Waiver Workshop Part 1
April 20, 2022 from 10:00 AM - 12:00 PM

  • Expand upon Service Definitions discussed in Waiver Basics (101 Part 2)
  • Learn more about the various services defined under waivers and some of their limits, requirements and options

Advanced Waiver Workshop Part 2
April 20, 2022 from 1:00 PM - 3:00 PM
  • Guide participants on researching waivers, utilizing resources and understanding your rights and responsibilities
  • Discussion of the various waiver document Appendices, Due Process, Fair Hearing and More

Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799

 

PA Family Network's Family Forum Updates Workshop
April 20, 2022 from 6:30 PM - 7:30 PM


Join the PA Family Network Advisors, families and individuals with disabilities for our Family Forums to:

  • discuss areas of life where supports might be needed;
  • network with other families and ask questions;
  • get latest updates from the Office of Developmental Programs.

Guest Speakers may be invited and topics will be announced on the Facebook page and through emails prior to the Forum.

Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799



Overview of Benefits Counseling - Webinar
April 21, 2022 10:00 AM - 11:00 AM


The Pennsylvania Department of Human Services is offering a webinar on the topic of the Social Security Administration’s Ticket to Work Benefits Counseling which provides individuals, their families, friends, and caregivers information relative to their benefits / services, and competitive integrated employment. This overview will be presented by Ms. Joy Smith, AHEDD Work Incentive Planning and Assistance, Certified Work Incentive Coordinator, Regional Manager.
 
Office of Long-Term Living Service Coordinators, Direct Service Providers, CHC-MCO staff and any individuals that work on employment are strongly encouraged to participate in this webinar on an overview of Benefits Counseling as it relates to the participants you serve.

Register here
 

PA Family Network's Long Term Planning Workshop
April 25, 2022 from 6:00 PM - 8:00 PM


Join the PA Family Network in this workshop to plan and problem solve if/when we cannot support our loved one with intellectual disabilities and/or autism:
  • Connect and network with other families.
  • Get information and strategies on handling Long Term Planning*.
  • Discuss and receive guidance on how to identify and share what is most important to our loved ones to live a meaningful and good life.
*We cannot offer legal or financial advice

Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799

 


ACRE Basic Certification Training - via Zoom
May 4-6, 2022 from 9:00 AM - 12:00 PM and 1:00 PM - 3:30 PM


The Arc of Pennsylvania’s Making Employment Work course is an ACRE Basic Certification Training. To receive certification, participants must attend a 3-day, live webinar training and then complete a self-paced, online curriculum. Completing this certification course will qualify individuals to provide Supported Employment services with Pennsylvania’s Office of Vocational Rehabilitation and Office of Developmental Programs. Our training combines lessons learned from traditional Supported Employment and Customized Employment techniques.

Register Here
 
 

The Arc of Pennsylvania's Customized Employment Training - via Zoom
May 18-20, 2022 from 9:00 AM - 4:00 PM

This 3-day training provides a comprehensive overview of Discovery (an alternative to traditional vocational assessments) and how to complete Discovery. For those seeking to become certified providers of Discovery through Marc Gold and Associates, it is the prerequisite training for certification. Individuals not seeking certification will gain valuable information and insight and may attend as auditors of the course.

This course is for:
Job Coaches and Job Developers, OVR Counselors, Supports Coordinators, Transition Coordinators, School Transition Teams, Parents and Families

Register Here


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The Arc of Pennsylvania
1007 Mumma Road, Suite 100
Lemoyne, PA 17043
717.234.2621 | 1-800-692-7258
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The Arc of Pennsylvania 
Serving people with intellectual and developmental disabilities
Sherri Landis, Executive Director
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