Copy
Facebook
Twitter
YouTube
Website
Click on the pictures above to find The Arc of PA's Facebook, Twitter, YouTube, &

Website!  To stay in the know, follow and subscribe!


 
March 17, 2022
View this email in your browser


Helping People With IDD and Their Families
in Ukraine


We watch in horror as the war unfolds in Ukraine. Our hearts go out to all the people of Ukraine whose lives are being torn asunder by the violence and chaos that grows daily. Our chapter leaders and others are asking what they can do to help. While there are a lot of options for donating to general Ukraine relief efforts, many are asking about how they can direct their support specifically to help people with IDD and their families. Since giving to foreign charities is not recognized as tax deductible by the IRS, we have two options for you and your constituents to make a tax-deductible charitable contribution.

First, for individuals who would like to make a charitable contribution that may qualify as tax-deductible in the United States, we have established The Arc's Ukraine Relief Fund. Individuals may give to The Arc of the United States and designate their donations to this fund. We will then do the required due diligence to identify, select, and make grants to reputable charities, foreign and domestic, that are engaging in relief efforts targeted to help people with IDD and their families in, or fleeing, Ukraine. 100% of any gifts we receive will be redistributed.

Please help spread the word. If your constituents are asking how they can make a tax-deductible charitable donation, please share this link to The Arc's Ukraine Relief Fund.

Second, for our chapters, other business entities, and those individuals for whom tax-deductibility is not a concern, you can also give to The Arc Ukraine IDD Relief Fund or consider giving directly to Inclusion Europe. They are working in collaboration with the VGO Coalition, a group of more than 100 local Ukrainian nonprofits serving people with IDD . Again, as a foreign charity, donations to Inclusion Europe are not deductible as a charitable contribution for tax purposes.

 

Pennsylvania News


Governor Signs Proclamation Marking March Developmental Disabilities Awareness Month

Governor Wolf's office recently signed an official proclamation establishing March 2022 as Developmental Disability Awareness Month in Pennsylvania. The Commonwealth's commitment to serving individuals with intellectual disabilities and autism is relayed through the proclamation in which Governor Wolf outlines specific ODP initiatives. Some of the initiatives included in the proclamation are racial equity, supporting families, and competitive integrated employment. 

Read the proclamation here



Summer Academy for Students who are Deaf or Hard of Hearing 

The Summer Academy is a two-week program for high school students who are deaf or hard of hearing and preparing for entry into post-secondary education leading to competitive integrated employment. 

Held in-person at the Commonwealth Technical Institute (CTI) at the Hiram G. Andrews Center (HGAC) in Johnstown, PA, the program is available to students who are Office of Vocational Rehabilitation (OVR) service recipients, and who are deaf or hard of hearing and enrolled in grades 10 through 12 in Pennsylvania. 

The program is offered by the PA Department of Labor & Industry, OVR’s Bureau of Vocational Rehabilitation Services (BVRS), in partnership with the PA Department of Education, Bureau of Special Education’s Pennsylvania Training and Technical Assistance Network (PaTTAN) and the PA Department of Labor and Industry’s Office for the Deaf and Hard of Hearing (ODHH) and CTI at HGAC. 

During the program, staff from BVRS, CTI at HGAC, PaTTAN and ODHH provide professional instruction and classes in the following areas: 

  • Assistive Technology to develop and strengthen independent living skills. 
  • Communication and Audiology to enhance necessary independent communication skills. 
  • Vocational Counseling and Career Exploration services to help define students’ vocational direction and provide opportunities for students to interact with successfully employed people who are deaf or hard of hearing. 
  • Social Work services to enhance students’ social skills and provide emotional support. 
  • Self-Advocacy and Self-Determination skills to develop and enhance each student’s ability to advocate for appropriate reasonable accommodations in the classroom. 
To apply, visit here

PACCA Accepting T.E.A.C.H. Scholarship Applications for the Summer 2022 Semesters
Deadline: April 8th

Early childhood education professionals interested in attending college for summer semesters beginning May or June should apply to T.E.A.C.H. now!  T.E.A.C.H. applications must be complete and submitted with all required documentation/ information by Friday, April 8, 2022, to be considered for a summer semester. PACCA will continue to accept applications on an ongoing basis, however, incomplete applications and applications received after this date will not receive priority for consideration. New scholarship awards for the Summer 2022 semester will be dependent upon funding availability.
 
Interested applicants should also begin the college admissions process now and contact an ECE advisor at their college/university. This helps ensure scholarship applicants are admitted to their college/university and can register for courses if/when they receive a T.E.A.C.H. scholarship. T.E.A.C.H. can provide contact information for ECE advisors at partnering institutions if needed – just contact T.E.A.C.H. and ask to be connected with a T.E.A.C.H. Counselor.
 
Need more information? Click here to view recent webinars. (Webinars for ECE professionals & employers are available.)
Ready to apply? Click here to download a scholarship application. 
Questions? Click here to contact a T.E.A.C.H. Counselor



Disability in the News



President Biden Announces Key Appointments to the President’s Committee for People with Intellectual Disabilities

President Biden announced his intent to appoint the following individuals to serve as members on the President’s Committee for People with Intellectual Disabilities.
 
Read more here.

Education Department Advises on Children with Disabilities in Private Schools 

The U.S. Department of Education’s Office of Special Education and Rehabilitative Services (OSERS) has released guidance on serving children with disabilities placed in private schools by their parents. The document addresses those children with disabilities, as eligible under the Individuals with Disabilities Education Act (IDEA), who are placed in private schools by their parents, are not enrolled in the local education agency (LEA) and are not seeking financial reimbursement to satisfy the requirement of a free, appropriate public education, as required by IDEA.

According to the guidance, children placed in private schools by their parents do not have an individual entitlement to the special education services they would otherwise receive in a public school and are not protected fully under the IDEA as those in public schools. However, the LEA is still required to spend a proportionate amount of its IDEA Part B funds on providing services to these children and must determine which children with disabilities will be eligible for these services. The guidance addresses new topics not included in the April 2011 guidance, including the responsibilities of LEAs during periods of extended public-school closures.

Read full guidance here

White House Outlines New Actions to Keep People with Disabilities Safe During COVID-19

On February 24, the White House announced new actions to address the needs of people with disabilities during the COVID-19 pandemic and recovery. These actions include providing more guidance and supports to schools to keep students with disabilities safe, expanding the services provided by the Disability Information Access Line, making COVID-19 tests more accessible, and distributing N95 masks to people with disabilities.

Access the fact sheet here

Bill Introduced to Help People Living With Long COVID

On March 2, Senator Tim Kaine [D-VA], Senator Tammy Duckworth [D-IL], and Senator Ed Markey [D-MA] introduced the Comprehensive Access to Resources and Education (CARE) for Long COVID Act. This legislation would improve research on long COVID-19 and provide resources for people with long COVID to better diagnose, treat, and prevent this disease.

Find out more about the bill here
 


WHO Spurs Backlash After Calling Down Syndrome A Birth Defect

"A statement about Down syndrome and birth defects from the World Health Organization spurred over a thousand comments on Facebook, many from enraged parents. The statement has been corrected and WHO issued an apology. Some parents say it’s not enough."

Read full article here


Special Olympics Calls Off World Winter Games In Russia

"Special Olympics is canceling its upcoming World Winter Games as a result of the Russian invasion of Ukraine. The international competition was supposed to be held in Kazan, Russia in January 2023."

Read full article here


Disability Advocates Want CDC To Reinstate Indoor Mask Guidelines

"Dozens of advocacy groups are calling for the Centers for Disease Control and Prevention to walk back major changes to its mask guidance arguing that the new recommendations are harmful to people with disabilities.

In a letter to CDC Director Rochelle Walensky late last week, over 100 groups and advocates asked the federal agency to again urge Americans to mask indoors in order to protect the most vulnerable."

Read full article here


Health-Care Barriers Prevent Many Autistic People from Seeking Medical Treatment

"Many autistic people with a serious or life-threatening condition do not seek medical care, according to a new study. The most common health-care barriers include difficulties communicating with physicians or making appointments by telephone."

Read full article here

People With Disabilities Segregated In Nursing Homes, Justice Department Alleges

"Colorado isn’t doing enough to allow people with physical disabilities to live in the general community, effectively segregating them in nursing homes in violation of the Americans with Disabilities Act, according to the U.S. Department of Justice."

Read full article here

Clinicians Must Put More Effort into Autism-Specific Medical Care

"My high-support adult autistic son’s many medical appointments have become routine. Even so, I broke into sobs during a recent session. Despite years of consults and procedures, no one seems to know how to treat his debilitating headaches. Not because potentially effective treatments don’t exist — they do — but because none are accessible to an autistic person with his sensory and developmental traits. "

Read full article here

Waiting Lists for IDD Services Balloon

"A new report is painting a grim picture of intellectual and developmental disability services nationally as labor shortages and other factors mean individuals in this population are struggling to access supports in the community."

Read full article here
 

This New Housing Project in Palo Alto is Aimed at People with Developmental and Intellectual Disabilities

"A new affordable housing development for people with intellectual and developmental disabilities has been initially approved by the Palo Alto City Council, with the aim of starting next spring."

Read full article here

Person First, Disability Second: The Road to Full Inclusion

"Shared language around the experience of disability is a starting point for having increased choices in the world. It also helps ensure people with disabilities are respected for who they are as people. Practice and policy must shift to become person-centered."

Read full article here

The Arc Announces Grant from The Coca-Cola Foundation to Support the Dissemination of Special Education Resources to Ensure Equality for All Families

"Students with disabilities and their families are experiencing yet another disrupted school year, as the COVID-19 pandemic continues to confront educators and families and creates new challenges in almost every aspect of education. The pandemic underscores the long history of disparities in education for students with disabilities and their families and the need for overdue improvements to the system.

Read full announcement here

ANNOUNCEMENTS/COMMUNICATIONS FROM
 
PA Office of Developmental Programs

 
 

Pass Through - Virtual Workshop Announcement - Disaster Resilience For Small Businesses and Organizations

ODP Announcement 22-027: Posting of Certified Investigator (CI) Forum Question & Answer (Q&A) Documents and Registration Now Open for April Certified Investigator Forum

ODP Announcement 22-099 UPDATE: Coronavirus Disease 2019 (COVID-19)--Clarification of Staff Reporting of COVID-19

ODP Announcement 22-021 UPDATE: Preparation for the Upcoming Rate Increases for the Adult Autism Waiver

ASD Virtual Seminar: Positive Behavioral Supports: Meaningful, Everyday Application --Registration is Open!

DHH Summer Academy Flyer


ODP Announcement 22-025: UPDATE Vendor Fiscal Employer Agent (VFEA) Wage Ranges and Benefit Allowance for Specific Participant Directed Services Effective March 1, 2022

Supporters Toolbox Podcast: Go With The Flow

ODP Announcement 22-029: Opportunity for Certification Program for Cornell University’s Work Incentives Practitioner Credential

Deaf & Hard of Hearing Summer Academy Flyer 2022


 
Legislative Updates from Katie Yost 

 

  • Representative Aaron Kaufer has introduced House Bill 2022 which requires that a public school to place a behavioral health representative in a school who may communicate and interact with students to provide social and mental health support assistance. It has been referred to the House Education Committee. 
 
  • Senator Christine Tartaglione has introduced Senate Resolution 235 which marks  March 2022 as Disability Awareness Month in Pennsylvania. It was referred to the Senate Rules and Executive Nominations Committee. 
 "Learn More"

 

Trainings/Workshops

PA Family Network's Advanced Waiver Workshops - Zoom 
The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network Advisors in this 2-part workshop which will expand in more detail what was presented in the Waiver Basics (101) Workshops and how waivers can support your loved one:

Advanced Waiver Workshop Part 1
March 17, 2022 from 10:00 am – 12:00 pm

  • Expand upon Service Definitions discussed in Waiver Basics (101 Part 2)
  • Learn more about the various services defined under waivers and some of their limits, requirements and options

Advanced Waiver Workshop Part 2
March 17, 2022 1:00 pm – 3:00 pm
  • Guide participants on researching waivers, utilizing resources and understanding your rights and responsibilities
  • Discussion of the various waiver document Appendices, Due Process, Fair Hearing and More


Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799


PA Family Network's Advanced Waiver Workshops - Zoom 
The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network Advisors in this 2-part workshop which will expand in more detail what was presented in the Waiver Basics (101) Workshops and how waivers can support your loved one:

Advanced Waiver Workshop Part 1
March 21, 2022 from 6:00 PM - 8:00 PM

  • Expand upon Service Definitions discussed in Waiver Basics (101 Part 2)
  • Learn more about the various services defined under waivers and some of their limits, requirements and options

Advanced Waiver Workshop Part 2
March 23, 2022 6:00 PM - 8:00 PM
  • Guide participants on researching waivers, utilizing resources and understanding your rights and responsibilities
  • Discussion of the various waiver document Appendices, Due Process, Fair Hearing and More


Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799



PA Family Network's Long Term Planning
March 22, 2022 from 10:00 AM - 12:00 PM


Family Members attending the workshop will be welcome to attend a 30 minute family-only networking opportunity after the presentation.
Join the PA Family Network in this workshop to plan and problem solve if/when we cannot support our loved one with intellectual disabilities and/or autism:
  • Connect and network with other families.
  • Get information and strategies on handling Long Term Planning*.
  • Discuss and receive guidance on how to identify and share what is most important to our loved ones to live a meaningful and good life.
Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799

 
 

ACRE Basic Certification Training - via Zoom
March 23 - 25, 2022 from 9:00 AM - 12:00 PM and 1:00 PM - 3:30 PM


The Arc of Pennsylvania’s Making Employment Work course is an ACRE Basic Certification Training. To receive certification, participants must attend a 3-day, live webinar training and then complete a self-paced, online curriculum. Completing this certification course will qualify individuals to provide Supported Employment services with Pennsylvania’s Office of Vocational Rehabilitation and Office of Developmental Programs. Our training combines lessons learned from traditional Supported Employment and Customized Employment techniques.

Register Here.



PA Family Network's Advanced Waiver Workshops 

The Office of Developmental Programs (ODP) provides services for individuals with intellectual disabilities and/or autism through the Person/Family Directed Supports, Community Living and Consolidated Waivers. Join the PA Family Network Advisors in this 2-part workshop which will expand in more detail what was presented in the Waiver Basics (101) Workshops and how waivers can support your loved one:

Advanced Waiver Workshop Part 1
March 29, 2022 from 6:00 PM - 8:00 PM

  • Expand upon Service Definitions discussed in Waiver Basics (101 Part 2)
  • Learn more about the various services defined under waivers and some of their limits, requirements and options

Advanced Waiver Workshop Part 2
March 31, 2022 6:00 PM - 8:00 PM
  • Guide participants on researching waivers, utilizing resources and understanding your rights and responsibilities
  • Discussion of the various waiver document Appendices, Due Process, Fair Hearing and More


Join the Zoom HERE. 
Meeting ID: 829 0563 3941
Passcode: 637984
One tap mobile: +1-312-626-6799



The PA Office of Rural Health & Temple University PA Inclusive Health Equity Collaborative
March 30, 2022 from 9:00 AM - 10:30 AM - Webinar


The Arc of Pennsylvania will  host a webinar featuring The PA Office of Rural Health as they discuss “Reducing the Burden of COVID-19 in Rural Pennsylvania: Lessons from the Field” and
Temple University as it presents an “Introduction to the Pennsylvania Inclusive Health Equity Collaborative”. This work with both groups as part of The PA Department of Health grant which focuses on building on and expanding partnerships while reaching Pennsylvania’s at-risk communities to combat the unequal burden of COVID-19 among vulnerable populations.

Register Here
 

Optimizing Employment Services and Supports Through Individual Planning for College Students with Intellectual Disability
March 31, 2022 at 2:00 PM

This first in a collaborative webinar series from the Think College NCC and NTACT:C will tackle this topic, highlighting the need for individualized planning of employment services and supports for college students with ID. We will share an overview of the potential partners, how they relate to each other, and the questions program staff need to ask to ensure planning for employment services and outcomes is effective.

Register Here
 


2022 ASD Virtual Seminar - Positive Behavioral Supports: Meaningful, Everday Application

We are always looking for better ways to support someone to achieve the quality of life they desire. This requires a social, behavioral, and biological understanding of that person. Positive Behavioral Support (PBS) is an empirically documented, person-centered approach that can be used in day-to-day supports for all people across all systems. For those of you who are not familiar with PBS, we will provide an overview of this framework sharing examples and ways that this has been implemented. For those of you who have a general understanding of the essential elements of PBS, we will provide you with tools and ways to infuse PBS into your programs and supports to strengthen your focus on supporting a positive quality of life.

Please join us on one of the following dates and times:

  • Wednesday, April 6, 2022, from 12:30 PM - 4:30 PM
  • Thursday, April 7, 2022, from 10:00 AM – 2:00 PM
  • Tuesday April 12, 2022, from 2:00 PM - 6:00 PM
  • Thursday, April 21, 2022, from 9:00 AM – 1:00 PM
  • Tuesday, April 26, 2022, from 11:00 – 3:00 PM

To register for a session, you must follow these steps:

  1. Click on the link below and log-in to MyODP or create a new account.
  2. Complete and submit the Spring 2022 ASD Seminar Demographics Form.
  3. Return to the main course page to register directly through Zoom.

To register: https://www.myodp.org/course/view.php?id=1942.



ACRE Basic Certification Training - via Zoom
April 11 - 13, 2022 from 9:00 AM - 12:00 PM and 1:00 PM - 3:30 PM


The Arc of Pennsylvania’s Making Employment Work course is an ACRE Basic Certification Training. To receive certification, participants must attend a 3-day, live webinar training and then complete a self-paced, online curriculum. Completing this certification course will qualify individuals to provide Supported Employment services with Pennsylvania’s Office of Vocational Rehabilitation and Office of Developmental Programs. Our training combines lessons learned from traditional Supported Employment and Customized Employment techniques.

Register Here. 
 

Charting The Lifecourse Showcase
April 13 - 14, 2022

The national Charting the Lifecourse (CtCL) Nexus will be hosting its sixth annual showcase on April 13 and 14, 2022. The event will take place in Kansas City, Missouri and a virtual attendance option is available. The CtLC Showcase is for people who use the framework to enhance person-centered practices in multiple roles and specialties.

Several tracks are available for different audiences including:

  • Self-Advocacy and Family Leadership
  • Education
  • Employment and Meaningful Day
  • Person Centered Planning
  • Front Door Supports
  • Direct Service Providers

The Charting the Lifecourse Nexus encourages you to be a part of the ever-expanding network of advocates, family leaders, professionals, and influencers in celebrating all our achievements in supporting person-centered practices for all people.

Register here


Overview of Benefits Counseling - Webinar
April 21, 2022 10:00 AM - 11:00 AM


The Pennsylvania Department of Human Services is offering a webinar on the topic of the Social Security Administration’s Ticket to Work Benefits Counseling which provides individuals, their families, friends, and caregivers information relative to their benefits / services, and competitive integrated employment. This overview will be presented by Ms. Joy Smith, AHEDD Work Incentive Planning and Assistance, Certified Work Incentive Coordinator, Regional Manager.
 
Office of Long-Term Living Service Coordinators, Direct Service Providers, CHC-MCO staff and any individuals that work on employment are strongly encouraged to participate in this webinar on an overview of Benefits Counseling as it relates to the participants you serve.

Register here
 

 

Copyright © 2022 The Arc of Pennsylvania, All rights reserved.
The Arc of Pennsylvania
1007 Mumma Road, Suite 100
Lemoyne, PA 17043
717.234.2621 | 1-800-692-7258
unsubscribe from this list    update subscription preferences 

Email Marketing Powered by Mailchimp
 
The Arc of Pennsylvania 
Serving people with intellectual and developmental disabilities
Sherri Landis, Executive Director
Share Share
Tweet Tweet
Forward Forward
Share Share