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Learn how you can become an MDF Blogger.

Join the Grandparents Campaign
Support Care and a Cure for your grandchild throughout the fall.

The Myotonic Dystrophy Family Registry
If you haven't already done so, register or update your survey information by 9/30/14 to be entered into our drawing for free iPads.

Take the 2014 Post-Conference Survey!
If you attended the 2014 MDF Annual Conference in Washington, DC, please take our post-conference survey to provide feedback on your experience!


2014 MDF Annual Conference: What a Weekend!

The 2014 MDF Annual Conference was an enormous success, feat-uring oversold registration, an unparallelled number of researchers, pharma and biotech partners and federal agency representatives, and a number of impressive programmatic "firsts."

Read more about this year's highlights, including a $3-5 million investment to drive drug development, learn the dates and location of the 2015 conference, and watch videos of the conference sessions on our website. Videos from the community-led track will be available next week.

MD-CARE Act Passes!

On September 18, the Paul D. Wellstone Muscular Dystrophy Community Assistance, Res-earch and Education (MD-CARE) Amendments passed the Senate by unanimous consent! The bill will now make its way to President Obama's desk to be signed into law. Read more about the passage of this historic bill.

Toxic RNA Research Update

Researchers from Dr. Matthew Disney's lab at the Scripps Research Institute of Florida recently published an article describing a new chemical they designed to inhibit the unhealthy repeat-containing RNA molecule seen in DM2. Read more about their findings, or view a presentation from the conference about this study!

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