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Creative Events Raise Funds for Care and a Cure


Asher Adleberg and River JensenMDF's youngest fundraiser? Six-year-old Asher Adleberg! The MDF community has done an amazing job of hosting parties, golf tournaments, crawfish boils, foot races and other events to support Care and a Cure for DM.

We have some amazing stories to share, and some fun upcoming events you might want to put on your calendar. 

Read about these inspiring events.

Treating Sleep Disorders in DM1


Woman in BedMore than 76% of DM family members reporting on symptoms via MDF’s Myotonic Dystrophy Family Registry indicate that problems with sleep or excessive daytime sleepiness are among the most prevalent DM1 symptoms they experience. Sleep studies are often recommended for DM1 patients with disrupted sleep or daytime sleepiness in order to help patients find the best treatment option.

Learn more about the sleep study.

Last Chance to Request Your Lab Coat


Image of Signed Lab CoatDid you know that MDF is giving away custom monogrammed lab coats autographed by leading DM researchers this month? To mark Rare Disease Day 2017, we'll give away signed lab coats as part of the Every Body Counts! Campaign to the first 10 MDF family members who sign up for new research opportunities during the month of February.

Request your lab coat before February 28, 2017.

Every Body Counts: Zenica Sanford


Zenica Sanford Family Image"My kids was my reason for participating in a phase I/II trial of the experimental drug IONIS-DMPKRx," says Zenica Sanford, a 34-year-old mother of four who has adult-onset DM1 and lives in Idaho Falls, Idaho. As part of the Every Body Counts! Campaign, MDF is highlighting DM community members who have proactively participated in research studies and clinical trials.

Read more about Zenica's clinical trial experience.

Research Fellow Profile: Łukasz Sznajder


Lukasz SznajderŁukasz Sznajder, Ph.D., is developing a mouse model for type 2 myotonic dystrophy, a crucial step that is expected to advance the understanding of the disease. A mouse model will allow Dr. Sznajder and his team to test therapeutic strategies like antisense oligonucleotides and small molecules.

Read more about Łukasz's work.
Events & Announcements
Upcoming Support Group Meetings:

2/18 - Support Group: Rochester, NY, U.S.
2/19 - Support Group: Orange County, C.A., U.S.
2/26 - Northern California Support Group, U.S.
3/11 - Support Group: Seattle, WA, U.S.
3/15 - Support Group: Portland, OR, U.S.
3/18 - Support Group: Washington, D.C., U.S.
3/18 - Support Group: Indianapolis, IN, U.S.
3/18 - Support Group: Rochester, NY, U.S.
3/18 - Support Group: Denver, CO, U.S.

Upcoming Events:

2/25 - MDF community member to host Annual Poker and Pintervention Party to Raise Funds for DM

2/25 - MDF staff will be present at Baylor College of Medicine's Rare Disease Day

3/25 - MDF community member Edibell Stone is fundraising at the Church Hill Irish Festival
Featured Website Content
Image of the Cohens Traveling

In February, MDF Support Group Facilitator Barry Cohen and his son Terry were profiled in a New York Times article about traveling with a disability. The article includes various tips and tricks that could be useful for your next trip.

Read more.

Donate now to support Care and a Cure.

Remember us when you shop with Amazon.

Use 
smile.amazon.com and select "Myotonic Dystrophy Foundation" as your charity.

Join the Community! Follow us: 

Toll free (US only): (866)-968-6642
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org

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