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Clinical Trials Resource Center
Up to date information on current clinical trials.

Upcoming Webinars:
2/20 - Nutrition Issues Related to DM
2/26 - FDA 101

Upcoming Support Group Meetings:
2/15 - Orange County, CA
2/21 - Caregivers (online)
2/28 - Seattle, WA
2/28 - Tampa, FL

Mike and Dean Sage: Living in the Present

 
Mike and Dean Sage, two brothers who are both living with DM, lean on each other and their family for support. They approach life differently than most people their age: although they are optimistic about their future, they now focus on living in the moment. Read more about the Sages.
 

The Road Ahead: MDF Strategic Planning Report


As the sole DM-only patient advocacy organization in the US, MDF plays an im-portant role in the search for treatments, in improving care, and ensuring that the DM community voice is heard as we move forward. To continue to meet our obligations to our community and to our mission of Care and a Cure, MDF held its annual strategic planning offsite last weekend. Learn more.


Rare Disease Day 2015


MDF is proud to be a Rare Disease Day partner for the third year in a row! In 2015, our advocacy initiatives will focus on improving and updating the reg-ulatory review process, and ensuring that our community understands the drug development pipeline.

Visit our advocacy issues page for more information on current regulatory legislation. You can also read a blog post by MDF Research Director Sharon Hesterlee about the impact that proposed changes to the US Food & Drug Administration (FDA) may have on myotonic dystrophy. Finally, be sure to tune in for "FDA 101," a webinar on February 26 introducing the FDA and its processes.
 

Sign Up for the Medical School Roadshow


Are you ready to take action and educate medical students about myotonic dystrophy? MDF will give you the tools you need to be successful, including training you on how to conduct your presentation, sending appropriate materials your way, and scheduling your meeting for you. Sign up to participate in the Medical School Roadshow today!
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Toll free (US only): (888) 968-6642 
Phone: (415) 777-8888
Email: info@myotonic.org
www.myotonic.org 

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