Copy
View this email in your browser

We Are Stronger Together!


We are sending out a heartfelt THANK YOU! to all who helped support newly diagnosed families during our Families Helping Families campaign. We are proud to report that the donations we received will fund the delivery of hundreds of MDF Toolkits, Warmline calls and new phone buddies to DM patients and their loved ones. Click here to see what resources MDF offers on a daily basis. 

Coming Soon: DM Clinical Care Recommendations


MDF is working with an international, 60-person team of DM clinical experts to draft recommendations designed to improve care for people living with myotonic dystrophy. The team just met in Miami to finalize the comprehensive recommendations. Read more here.

Don't Miss Our Legislative Update Webinar


Get the news from Capitol Hill, and find out how you can help increase federal funding for DM research. Sign up now to participate in next week’s congressional update webinar. We need your voice!

Study Examines Disease Impacts on Quality of Life of People Living with DM2


Researchers in eastern Europe recently conducted a study to identify factors affecting quality of life in people living with DM2. Their research indicates that DM2 patients with the most severe form of the disease experience declines in quality of life similar to people living with DM1. Read more here.
 

Do You Know a DM Superstar?


Is there an amazing DM advocate, donor or volunteer in your life? Share their shining example with the rest of the MDF community; nominate them for a MDF Community Award here
 

MDF Fellow Uses Stem Cells in Search for DM Therapies


Recent MDF Fellow Dr. Yao Yao, currently a professor at the University of Minnesota, has published a paper in Nature Communications on his research using stem cells to regenerate skeletal muscle. His work identified a new potential target for therapy development in DM, and Dr. Yao is now exploring that research opportunity. Read more here. 

Upcoming Support Group Meetings:
6/25 - Seattle, WA
7/16 - Denver, CO
7/16 - Washington, DC
7/23 - Northern CA

Upcoming Events:
6/29 - MDF Webinar: Mid-Year DM Research Legislative Update
Clinical trials and research studies need you! This multi-center, observational study by the DMCRN is seeking participants now. Visit our Study & Trial Resource Center for details.
Join the Community! Follow us: 

Toll free (US only): (866)-968-6642
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org

unsubscribe from this list    update subscription preferences