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Watch our Newest Video!
Living with DM: The Community Speaks

The MDF Blog Needs You!
Learn how you can become an MDF Blogger.

Join the Grandparents Campaign
Support Care and a Cure for your grandchild throughout the fall.

Registry iPad Winners!
Congratulations to Billy Kasney of Fort Collins, CO, Nicholas Emerson of O'Fallon, IL, and Steven Bernstein of Rockland, MD! Your iPads are on their way.

Upcoming Support Group Meetings:
10/15 - Portland, OR
10/15 - Washington, DC
10/18 - Worthington, OH
10/19 - Orange County, CA

The Pontifex Family: Strength Through Community

Three years ago, Sarah and Sam Pontifex of Adelaide, South Australia had never heard of myotonic dys-trophy, but their three children were experiencing shared symptoms that they knew could not be the result of mere coincidence. Read more about the Pontifexes and their DM journey.

Celebrate Caregivers

National Family Caregivers Month is just around the corner, and MDF is honoring caregivers in our community by sharing their incredible stories on our website. If you would like a special caregiver in your life to be recognized, please send us their story and photo. Each submission will also be entered to win one of four MDF Care Packages! Learn more about National Family Caregivers Month.

Update Your Registry Information by Oct. 31!

Are you or your family members in the Myotonic Dystrophy Family Registry? We've announced a number of new studies that need your participation. Everyone who signs up or updates their information by October 31 will receive a new MDF t-shirt! Learn more about our Registry initiatives.

MDF Merchandise Now Available!

MDF merchandise is now available for purchase! You can buy t-shirts, bumper stickers, iPhone cases, and more. Fill out our webform to order!

Join the Community! Follow us: 

Toll free (US only): (888) 968-6642 
Phone: (415) 777-8888

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