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A Couple Copes with DM 

 
When Mary Childress was in her thirties, she’d wake up in the morning with her hand clutched in a very tight fist. “I’d have to use my other hand to pry my fingers open, and it was painful to do it,” she recalls 30 years later. Read more

On October 13th: Advocate for a Cure!

 
In July, the U.S. House of Representatives overwhelmingly passed bipartisan legislation called the 21st Century Cures Act. We are calling on you and other DM community leaders, families, health care providers, and researchers to join us on October 13th for the first ever DM Congressional Call-In. Read more.

Clinical Trial Update: Currently Recruiting

 
Many of you know that the Phase I/II clinical trial for a potential therapy, ISIS-DMPKRx, for people with myotonic dystrophy type 1 (DM1) has been underway since last December. The trial is still actively recruiting participants. Click here to learn more.

 Are You An MDF  Annual  Conference Attendee?

 
We need your voice! MDF  recently  sent out a survey to all  2015 MDF Annual Conference attendees to get your feedback on the conference, the sessions, the pre-conference activities and much more. If you completed the survey, thank you! If you haven't, the survey is open until Monday, October 19th. If you attended the conference but did not receive the link, email MDF and we'll forward the survey link. Your opinions matter - thank you!
Upcoming Support Group Meetings
10/11 - Orange County, CA
10/17 - St. Paul, MN
10/24 - Seattle, WA
Digital Academy
Missed the 2015 MDF Annual Conference? Check out our new video uploads.
 
Join the Community! Follow us: 

Toll free (US only): 86-MYOTONIC
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org 

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