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Brain Awareness Week - March 16-22
Learn more about how DM affects the brain and central nervous system.

Find a Doctor Program
The MDF VIP List has been re-named the Find a Doctor Program! Zoom into the map to locate a doctor near you.

Clinical Trials Resource Center
Up to date information on current clinical trials.

Upcoming Support Group Meetings:
3/18 - Portland, OR
3/21 - Seattle, WA
3/28 - New Orleans, LA

Adapting to Life's Challenges

An active MDF advocate, fundraiser and community member, Teresa Schmertman shares her approach to life and living with DM. "It's about a passion for the cure," she says, "second only to my passion for my family." Read Teresa's story.

Care and a Cure on Capitol Hill

For the second year in a row, MDF participated in Rare Disease Week activities on Capitol Hill and at the National Institutes of Health as part of the Rare Disease Legislative Advocates conference. Read more about our efforts in Washington, DC.

Have Your Questions Answered at IDMC

During IDMC this June, DM community members will have the opportunity to connect with leading researchers, doctors and community experts. IDMC's family session will feature a question and answer portion that will be live-streamed and accessible to anyone around the world. To ensure that this session is interesting and relevant to the MDF community, we ask that you take a few moments and submit questions about myotonic dystrophy that are important to you and your family. Click here to complete the questionnaire.

Update Your Address Books!

The Presidio post office is moving, so we will no longer be able to use our P.O. Box. MDF is transferring our mail to our new physical office space. Beginning April 1, please address all mail to:
     Myotonic Dystrophy Foundation
     1004-A O'Reilly Ave.
     San Francisco, CA 94129
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Toll free (US only): (888) 968-6642 
Phone: (415) 777-8888

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