Copy
View this email in your browser

Early Bird Registration Open for the 2017 MDF Annual Conference


Image of San FranciscoThe 2017 MDF Annual Conference takes place September 8-9, 2017, in San Francisco, CA, U.S. The conference will feature MDF's largest and most varied array of sessions and meetings for community members and professionals. Register today—the Early Bird conference registration rate ends June 2, 2017.

Learn more about the 2017 MDF Annual Conference.

MDF Launches First MDF DM Day in Iowa


Image of MDF community membersMDF is launching a new community initiative, MDF DM Days. These special one-day events will be held in three locations across the U.S. in 2017 to bring together clinicians, researchers and MDF community members to share information and resources.

The first MDF DM Day takes place on Saturday, June 10, 2017, at the University of Iowa, and will feature patient-centered programming, breakout sessions, and an interactive Ask-The-Experts session.

Read more about the event.

Eric Hutchinson Shares "Dear Me" Music Video with MDF Community


Image of Eric HutchinsonMDF community member and critically-acclaimed singer Eric Hutchinson recently released a new music video for his song "Dear Me," a single from his fourth album East Street. Eric is offering fans a chance to win tickets, airfare, and a two-night hotel stay for one of his shows!

Watch the "Dear Me" video now and learn more details about the contest.

A Journey from Nurse to Caregiver


Donna BoulmayEven though Donna Boulmay spent a career as a nurse before retiring, she lived most of her adult life in the midst of a medical mystery that had shaped much of her family’s existence. But in 2010, when a neurologist diagnosed her grandson with DM, the blur of the family’s past came into sharp focus.

Read Donna Boulmay's family story.

Myotonic Dystrophy: A Grandson's Perspective


Image of Pen and Letter"Some people may say that the most affected person [in a DM family] is the person with the illness or disease. They’re wrong. The caretakers are equally affected. But with teamwork, commitment, and courage you can be strong and stand up to whatever barrier tries to block your path, even myotonic dystrophy."

Alex Wiggans, the 13-year-old grandson of MDF community members Dr. Glen Wiggans and Marlo Wiggans, has written a moving and eloquent essay on life in a myotonic dystrophy family.

Read the heartfelt personal essay.
Events & Announcements
Upcoming Support Group Meetings:

4/14 - Support Group: Northern California, U.S.

5/17 - Support Group: Portland, OR, U.S.

5/20 - Support Group: Indianapolis, IN, U.S.

5/20 - Support Group: New Orleans, LA, U.S.

5/20 - Support Group: Rochester, NY, U.S.

5/21 - Support Group: Orange County, CA, U.S.​

Upcoming Events:

6/10 - Launch of MDF DM Days in Coralville, Iowa, U.S.
Featured Website Content
Image of Researcher

There are many heroes in the MDF community, from the people living with this disease to their caregivers, physicians and the researchers who focus on developing therapies and better disease understanding every day. Watch this moving short film from MDF to learn about a few of these heroes described and celebrated.

Watch the film.

Donate today to support Care and a Cure.

Remember us when you shop with Amazon.

Use 
smile.amazon.com and select "Myotonic Dystrophy Foundation" as your charity.

Join the Community! Follow us: 

Toll free (US only): (866)-968-6642
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org

unsubscribe from this list    update subscription preferences