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The Rewards of an Unexpected Role

When Kevin and Loraine Dressler of Huntington Beach, CA, entered their 60s a few years ago, they started looking at retirement communities. The couple was looking at places with lots of leisure activities and thought about buying a motor home and visiting U.S. national parks.

But that’s not what happened. Read the full story here.  

 Community  Perspectives on  Future Drug Benefits  and Risks 

 
As part of our investment in the development of effective treatments for myotonic dystrophy, MDF is helping develop what is called 'benefit/risk' information for regulatory agencies reviewing potential therapies.

This past summer, MDF worked with Silicon Valley Research Group to survey people living with myotonic dystrophy types 1 and 2. The survey presented a series of hypothetical new treatments and asked MDF community members to choose the drug benefits that were most important, and what they thought of potential side-effects. Read the full story here. 

 

 Caregiving Today:
 A Review


In honor of National Family Caregivers Month, and to celebrate the many critically important caregivers in the MDF community, we’ve taken a look at the status of caregiving today. Read on to learn how others experience caregiving and describe the impact on themselves and their families.
 


ISIS-DMPKRx
Update


 
The MDF Dispatch, October 2015 Vol. 2, included an update about a second generation version of ISIS-DMPKRx, the potential therapy currently in a Phase I/II clinical trial. Please click here for more information and a clarification of that update.  
 
Upcoming Support Group Meetings and Events:
  
11/14 - Tampa, FL
11/14 - Greensboro, NC
11/15 - Boston, MA
11/21 - Denver, CO
11/21 - Caregiver Virtual Mtg
11/23 - Meditation for Caregivers
12/5 - Craft & Bake Sale
1
2/5 - Houston, TX
12/7 - Switzerland
12/12 - Caregiver Virtual Mtg
1
2/15 - Albuquerque, NM
Bioworld Today: "An ounce of prevention is worth several pounds of cure when it comes to protecting clinical trials from the dangers lurking in social media." Read the full story here. 
We are pleased to announce our new, mobile-optimized website! Now you can access all of our articles, stories, and tools in a format specifically designed for your smart phone or tablet. Let us know what you think!
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Toll free (US only): (888) 968-6642 
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org 

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