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Help a DM Family and We'll Double Your Donation!


MDF community member Larry Lord was so inspired by our current Families Helping Families campaign that he decided to join us. For a limited time, Larry will double your gift (up to a total of $10,000) to provide funding for family resources and support programs. Find out how you can help.

Catching Up With MDF's Interim CSO, Dr. John Porter


Dr. Porter knows firsthand what it takes to develop rare disease therapies, from basic research all the way to clinical trials. We spoke with him to get his perspective on the importance of patient advocacy in driving treatment development. Read the interview here.

Financial Aid Is Available for the 2016 MDF Annual Conference


Don’t miss out on the biggest DM community event of the year! You may be eligible for financial aid to attend. Don't forget Early Bird discounts end June 3rd. Click here for all the details on this unique event.

Applying Gene Editing Technology to RNA Diseases


For the first time, researchers have a means of targeting RNA in living cells. There is potential for this approach to edit the CTG and CTTG expansions in DM1 and DM2, respectively. Read more.

Gender Matters in DM1


Dr. Guillaume Bassez and a large team in France and Canada recently published an analysis of the impact of gender on the DM1 phenotype. Read about their findings here.
 

Upcoming Support Group Meetings:
6/04 - Washington, DC
6/18 - Northern California
7/09 - BBQ in Portland, OR
7/16 - Denver, CO
7/16 - Washington, DC
7/23 - Northern, CA

Upcoming Events:
6/11 - Jensens' Crawfish Boil
6/29 - MDF Webinar: Mid-Year DM Research Legislative Update
MDF is hosting a special advocacy webinar on June 29th! Topics of discussion include the legislative budget process for DM research requests, what Congress is likely to do next, and how you can help advocate!
Learn more and RSVP here.
Join the Community! Follow us: 

Toll free (US only): (888) 968-6642 
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org 

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