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DM and Duchenne Muscular Dystrophy: Is There a Link?


Since the 1992 discovery of the mutation causing DM1, re-searchers have been trying to understand how the DNA mutation causes such a wide variety of symptoms. A new study may have found a genetic link between DM and Duchenne muscular dystrophy, potentially explaining the progressive muscle deterioration that occurs in adults with DM1. Read more.
 

Satisfy a Craving for Research at the 2015 MDF Annual Conference

 
The MDF Annual Conference is the best place for families looking for the most current information available on disease management, networking opportunities and support. New this year is a track focused on the latest in DM research, as well as workshops, roundtables and other programs for researchers from industry and academia. Read more.
 

Congress is Listening!

 
In the past month, MDF community members have raised their voices to educate Congress about the importance of medical research for those living with DM and other rare diseases. You have written over 220 letters to legislators from 28 states and 55 Congressional districts, and our voices are being heard: on Friday July 10, the House of Representatives passed the 21st Century Cures Act by an overwhelming majority! Our work is not done yet - we need to continue to push for action on this bill in the Senate. Click here to request personalized letters to your legislators. Thank you for helping us bring Care and a Cure to Capitol Hill!
 

Miles of Fun Await The Next Host

 
Our friendly ambassador Miles is getting itchy for some travel opportunities. He has already helped raise money at the annual Jensen Crawfish Boil and showed support for the MDF community at IDMC-10 in Paris, and is ready for more. He doesn't wish to be impertinent, but he's asking who might like to have him over for tea, a dinner party, or an athletic event so he can help raise funds to boost MDF's support for care of families living with DM and speed our progress toward treatments. Learn how Miles can join you at your next event!
Community Leadership Awards
Help us honor outstanding community members. Nominate someone today!

MDF Family Day
Join us in San Francisco on August 29 for the inaugural MDF Family Day celebration.

Upcoming Support Group Meetings
7/25 - Madison, WI
8/1 - Greensboro, NC
8/8 - Washington, DC
8/9 - Orange County, CA
8/9 - Phoenix, AZ
8/15 - St. Paul, MN
8/18 - Caregivers (online)
8/22 - Tampa, FL
8/22 - Murfreesboro, TN
Clinical Trials Resource Center
Up-to-date information on current clinical trials.

Find a Doctor
Zoom into the map to find a DM medical professional near you.
 
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Toll free (US only): 86-MYOTONIC
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org 

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