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The Herbert Family's Journey


MDF Board Member David Herbert uses his background in business development and new ventures to help forge critical partnerships for MDF. Understanding the economic and social impacts of DM is crucial to getting companies working toward a cure. "The work is energizing for me," he says. "It's very gratifying to me to be able to help." Read more about David and his family.
 

Careful! Social Media Can Undermine Clinical Trials


Clinical trials are a critical part of the search for promising treatments for myotonic dystrophy. Your participation in clinical trials and other research studies is invaluable; we won’t learn important information about the disease and advance the search for effective therapies without you. That said, being a smart trial or study participant is a major responsibility. Learn more about trial participant best practices.
 

Care and a Cure for Your Grandchild


Grandparents in the MDF community have dreamed up a special way of showing love for their families, by campaigning to bring medical care to their grandkids and to speed our progress toward a cure. We'd love to hear ideas about ways you might like to participate. Learn more about how you can join the families who are teaming up to celebrate Grandparents' Day this September.
 

Save the Date: MDF Family Day in San Francisco


Within our community, each person - and every family - experiences DM differently. There's a great deal we can learn from one another, especially when we have the opportunity to meet face-to-face. MDF invites families in the San Francisco Bay Area to enjoy a full day of fun together on Saturday, August 29th. The day will begin with sailboat rides hosted by the Bay Area Association of Disabled Sailors, followed by a special brunch at Delancey Street Restaurant.

More information will be available soon. We look forward to greeting you on the San Francisco shoreline!
 

Congress to Vote on 21st Century Cures Act


The House of Representatives will be voting on the 21st Century Cures Act later today. We will update you on the bill's status as soon as the results of the vote are announced.

Please take a moment to contact your Representative ahead of this vote and let them know how important this bill is to you and the DM community. Contact Aly Galloway, MDF Advocacy & Engagement Manager, for your personalized email template or phone talking points.
Community Leadership Awards
Help us honor outstanding community members. Nominate someone today!

Tell Congress Your Story
Raise your voice and tell Congress to preserve medical research funding.

Upcoming Support Group Meetings
7/11 - Worthington, OH
7/12 - Orange County, CA
7/18 - Seattle, WA
7/20 - Caregivers (online)
7/25 - Madison, WI
Key DM Research Discoveries
View a timeline of important discoveries in DM research, from 1909 to today.

Clinical Trials Resource Center
Up-to-date information on current clinical trials.

Find a Doctor
Zoom into the map to find a DM medical professional near you.
 
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Toll free (US only): 86-MYOTONIC
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org 

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