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MDF Gala Celebrates Progress

Photo from the Gala
Our 2nd Annual MDF Gala was a tremendous success, thanks to the many heroes in our special myotonic dystrophy (DM) community. More than 250 guests celebrated MDF’s progress since its first gala in 2013, raising $500,000 to drive the next phase of our Care and a Cure mission for families living with myotonic dystrophy.

Read more about the event.

MDF Releases New Short Film, DM Heroes


Erica KellyThere are many heroes in the myotonic dystrophy (DM) community, from the people living with this disease to their caregivers and physicians, as well as researchers focusing on developing therapies and increasing better disease understanding every day.

Watch this inspirational and moving short film.

Families Helping Families: Sarah and David Berman


Photo of the BermansSarah and David Berman had never heard of myotonic dystrophy until their baby Zoé was born with the congenital-onset form of the disease, which is known as CDM. "Zoé couldn’t suck," Sarah recalls. "She was just kind of limp and open-mouthed. She didn’t really cry. She had low muscle tone."

Learn more about the Berman family and their connection to myotonic dystrophy.

MDF Announces Live Chats for Virtual Caregivers

Facebook ImageMDF knows how important caregivers in the MDF community are to maintaining quality of life for people living with this disease.

To support caregivers, MDF offers the MDF Caregivers Support Group Program. Learn more about this important program here and RSVP for the November 1st Facebook live chat.

Register Now for Free Webinar on Palliative Care

Palliative Care ImageOn November 7th, MDF will host the webinar "Living Long, Living Well: A Current Approach to Palliative Care." Dr. Anne Broderick and Dr. Laurie Gutmann will provide an overview of palliative care, explaining when to start, what is included and common misconceptions.

Register now for the November 7th webinar.

MDF Welcomes New Communications Manager Jazzy Wright


Photo of Jazzy WrightJazzy Wright joined MDF in October 2016 as the organization’s Communications Manager. In that role, Jazzy is responsible for managing MDF's communications, and will increase public awareness of myotonic dystrophy.

Learn more about Jazzy Wright.
Upcoming Support Group Meetings:

11/8 - Ottawa, Canada
11/12 - Rochester, NY
11/13 - Orange County, CA
11/13 - Richmond, VA
11/18 - Caregiver Virtual Support Group
11/19 - Northern California
11/19 - New Orleans, LA
11/19 - Denver, CO

Upcoming Events:

11/5 - 2016 Annual Inherited Neuromuscular Disorders Family Conference
11/13 - FasterCures Conference
11/16 - World Orphan Drug Congress
11/29 - Muscular Dystrophy Coordinating Committee

Photo of Lungs
For the first time ever, the 2016 MDF Annual Conference included an expert on pulmonary issues. Dr. Noah Lechtzin, M.D. of Johns Hopkins University spoke about common respiratory impacts in myotonic dystrophy and strategies for symptom management.

Watch the discussion and view presentation slides from the 2016 MDF Annual Conference.

Donate now to support Care and a Cure.

Join the Community! Follow us: 

Toll free (US only): (866)-968-6642
Phone: (415) 800-7777
Email: info@myotonic.org
www.myotonic.org

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