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CHS-MC Chapter Update August 11, 2021
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In this Issue:


Office Summer Holidays, Shared Health, Every Step Counts, Research Opportunities, Message from CBS, Grey Cup Pool 2021, CodeRouge, Camp Kits, PPE Kits, 2022 Gala Committee, Improving Care VWD  

 

While Manitoba prepares to fully reopen, protecting our most vulnerable remains our top priority.
Masks will continue to be required in all health care facilities. A medical mask will be provided prior to entry.
Please visit http://ow.ly/16Xm50FJD0T and http://ow.ly/kHk250FJD1t for visitation guidelines and more.
New public health orders will go into effect at 12:01 a.m., Saturday, Aug. 7. Please visit http://ow.ly/7NZc50FJCQI for more information.

Every Step Counts! 




There is still time top join us for the CHS-MC’s Healthy Aging Committee's Every Step Counts! All adult Chapter members 50 years old and up are invited. We are logging steps until August 31! Use the step counter on your phone or download the free Step Up app http://ow.ly/q18I50FrJds

"Looking good last week…
So collectively, we just walked from Winnipeg to Moosomin SK.!
Not sure why we would want to do that, but we did!
I still think there are others out there that can participate.
Remember, this is not a competition, more of a challenge to participate!
But, if it were a competition, Margaret would be winning hands down!
Great job everyone!
Keep walking…"

John Rogasky, Chair of the Healthy Aging Committee

Opportunities to Participate in Research

 

CHS has published new opportunities to participate in research studies. More information and links 

Patient telemedicine experience survey 

The survey is focused on understanding of the use, impact and satisfaction with telemedicine pre- and post-COVID-19 pandemic. It is open to people with hemophilia, aged 18 years or older. All responses will remain strictly anonymous and will be handled in accordance with local privacy regulations. Requires 10-15 minutes to complete online.

Gene therapy and how it can affect a person’s mental health outlook

This study is looking at how a person’s mental health outlook might be impacted by receiving gene therapy for hemophilia. It is open to men and adolescents (age 15 or older) with moderate or severe hemophilia A or hemophilia B. Compensation provided for a 90-minute online interview.

Message from Blood Product Management CBS


To allow for faster pick-up and proper verification of orders we would like to request that anyone picking up product contact Canadian Blood Services Distribution prior to arriving.  If product will be picked up after 4:00 PM we request that we be notified by 3:00 PM on the day of pick-up.  If prior notification is not received there may be delays in being able to issue the order in a timely manner.  Distribution can be reached at 204-789-1034.

As a reminder, as previously communicated in October 2014.  We continue to ask that patients picking up their Homecare product at Canadian Blood Services only do so Monday to Friday between the hours of 10:00 AM to 6:00 PM (excluding Stat holidays). Anyone coming to pick up product outside of these times will be asked to come back during the days and hours indicated above.

Grey Cup Pool 2021! 

We are happy to announce that the Chapter has applied to run two Grey Cup Pools for 2021! Once we have the tickets printed and sorted we will be looking for members to take books of 10 tickets to sell. Would you take some tickets? The proceeds from the Grey Cup Pool are used to fund Member Services.

If you are interested in selling pool tickets, contact us at info@hemophiliamb.ca  and let us know how many books you would like. Once we have them, we'll get them out to you! 

Go Bombers GO! 

CODErouge 2021

The CHS is thrilled to be presenting the 3rd Canadian conference on bleeding disorders in women, taking place virtually on the mornings of September 10 and 11, 2021.
CLICK HERE TO REGISTER: www.hemophilia.ca/coderouge-2021

For the third time in Canada, health care providers and affected women will meet for a conference exclusively dedicated to bleeding disorders in women. The conference will feature online sessions on iron administration, rare bleeding disorders, psychological impact of heavy menstrual bleeding, hemophilia management in perinatal settings, and access to care among other topics.

We have come a long way since the launch of our awareness program CODErouge | WHEN WOMEN BLEED TOO MUCH and our first conference in 2012, but there is still so much to learn and to do to succeed in having proper diagnosis for women with bleeding disorders. Education and knowledge is key to ensure adequate care for women affected with bleeding disorders.

Join us to hear what the experts and the patients are eager to share!
www.hemophilia.ca/coderouge-2021

Simultaneous translation will be available in French.

Summer Travel Kits for Kids from Bayer

 

We still have some!
A great big thank you to Bayer Canada for these summer travel kits for kids! A travel size water bottle, sharps container and a cool pack that can Velcro on is super useful. Bleeding disorders families are invited to contact the Chapter at info@hemophiliamb.ca and we will deliver or post the kits for the children in your family. 

PPE Kits Still Available To Order: Masks for Back to School!  



How are your supplies holding up? We have hand sanitizer and anti-bacterial soap in the office and are happy to order masks for you and your family. Members can order at http://ow.ly/eRTd50Euh3W

2022 Gala Committee Looking for Members  



The 2022 Gala Dinner of Culinary Inspirations will be held at the Delta Hotel by Marriott Winnipeg on Saturday, March 26th! f you have attended this event in the past, you know how much fun it is! The Gala Dinner is the Chapter's largest fundraiser. 2022 promises to be a welcome back to a fantastic culinary adventure and dancing! 

Do you enjoy throwing parties and having fun? Are you looking for a way to become more active in the Chapter? The Gala Dinner planning committee is looking for some new members to join the group to help plan the event. The current committee is very experienced but is eager to welcome new ideas and make new connections to the community.  Meetings will begin in early September. The committee usually meets once a month and sub-committees work independently. Planning will be a mix of virtual and in-person meetings.   

Do you want to learn more about the Gala Dinner? Please visit the Gala website and the Gala Volunteer job positions.

Improving Care for People with VWD
World Federation of Hemophilia
May 18, 2021

Thank you Chapter Update Sponsors! 

 
Copyright © 2021 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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