CHS-MC Chapter Update November 18, 2022
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In this Issue: 

Presentation on Gene Therapy & Outcomes for Mild & Moderate Hemophilia, Important News CBS/Hemlibra Pick-up, Sports Bursary, Gala Save the Date, Giving Tuesday, Membership Registration

Gene Therapy & Outcomes for Mild/Moderate Hemophilia


Join us for this in-person event at Canad Inns Polo Park on Wednesday, November 23rd at 6 pm. Refreshments will be served for 6 PM and presentations begin at 6:30 PM. This is a great opportunity to get a new tourniquet, a Lucky Iron Fish and the latest print resources. We will review Member Services and introduce the new reimbursement process for claims. Don't miss out!

Important Product Pick-up Information    

There are changes to product pick-up for members who are using Hemlibra and an important reminder for those who pick-up their medication at Canadian Blood Services.



Canadian Blood Services is reminding members that pick up at 777 William Avenue is only available from Monday to Friday between the hours of 10 am and 6 pm (excluding statutory holidays). If you arrive at any other time, you will be asked to come back during their operating hours. If you are picking up product after 4 pm, please call Blood Product Management at 204.789.1034 and notify them before 3 pm, that day. This will avoid delays in having your order issued. It is always best to call in advance of picking up to save yourself some time but essential for picking up after 4 pm.

Members using Hemlibra are advised that the HSC Psychiatric Health pharmacy will no longer be distributing Hemlibra as of October 24, 2022. It will now be dispensed from the CancerCare (CCMB) outpatient pharmacy. A letter from the Manitoba Bleeding Disorders Program (MBDP) nurses regarding this change will be sent to all affected.
Currently, the CCMB pharmacy does not have an “outpatient” dispensing area due to Covid. Members will contact the MBDP nurses when they have 2 treatments remaining, to re-order. Then arrangements will be made to collect your medication. It is important to note that you will need to bring a cooler to take your product home. Again, all the instructions will be in the letter from the nurses.    

 Member Program: Sports Bursary

Do you have a child with an inherited bleeding disorder enrolled in a sport this fall? Swimming lessons? 

What is the Sports Bursary Program?

The Sports Bursary program is a CHS-MC funded program to promote a healthy lifestyle for children and youth with bleeding disorders through safe physical activities.

Who Qualifies for the Program?

Chapter youth, 17 years or younger, with a moderate or severe bleeding disorder qualify for this program. However, if your child’s phenotype (how much they bleed) doesn’t match their diagnosis or a bleeding incident has created challenges for your child to participate in sports, please contact the Chapter to discuss program eligibility. Our goal is to help our families.

To learn more and how to apply please visit Sports Bursary.

19th Annual Gala Dinner of Culinary Inspirations Save the Date! 

We are pleased to announce that the date for the 2023 Gala Dinner is
Saturday, March 18th! 

Giving Tuesday, November 29th 2022 

What is GivingTuesday? GivingTuesday is the world’s largest generosity movement. It was created in 2012 as a simple idea: a day that encourages people to do good: make someone smile, help a neighbour or stranger, show up for an issue you care about, or give some of what you have to those in need. Over the past nine years it has since grown into a global movement, unleashing the power of people and organizations to transform their communities and the world. GivingTuesday is a time when Canadians, charities, and businesses come together to celebrate giving and participate in activities that support charities and non-profits; to thank, help, give, show kindness, and share what they have with those in need. Every act of generosity counts. Everybody has something to give.

Please consider making a donation to the Chapter through our page. 

Have you Updated Your Membership Information? 

Congratulation to Chapter member N. Slavuta, who won the first prize that was drawn at the end of August. She won a $300 Esso card!  Everyone who was in the first draw is carried over to the second draw, which will be held on November 30th. 

Why would you fill in a membership registration...again? 
1. Members move, drop their land line or change their email address and we don't want to lose touch with you! 
2. If you are from a Chapter family, but have a new diagnosis, we will not have that information and might miss sending you important bleeding disorders news. 
3. If your young adult has moved away, we likely won't get their new contact information until they need a service or want to access a program. 
4. If you want an effective organization that will advocate on behalf of the bleeding disorders community, we need to be able to tell government and funders how many Manitobans we serve and the variety of bleeding disorders represented in our community.
5. Everyone who fills out a Membership registration form, between June 2022 and June 2023, is entered to win a prize!  

Fill out your Membership Registration Form today! 

Thank you Chapter Update Sponsors! 

Copyright © 2022 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.

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