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CHS-MC Chapter Update March 26, 2020
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In this Issue:


Message from CHS-MC President, COVID-19 and Bleeding Disorders, CHS-MC Annual General Meeting, Program Cancellations
 

Message from CHS-MC President, Milena Pirnat
 


"I hope everyone is healthy and are managing well through COVID-19. As a society we are figuring out strategies to continue our work to support people with bleeding disorders in Manitoba and abroad. Some events will be cancelled and some postponed at this time for safety reasons. Your Board Directors and Christine are working hard to find efficient and creative ways to serve the community at these turbulent times. We are making sure to be informed, organized and ready. Always feel free to connect with us if you have any questions and/or concerns. The bleeding disorders community is a strong one, and we will get through this crisis together." 

COVID-19 & Inherited Bleeding Disorders
 

Health Sciences Centre (HSC)
If you experience a bleeding episode please page the Manitoba Bleeding Disorders Program (MBDP) nurses or the hematologist on call for instructions. You can find all the paging instructions at Paging Instructions.
Current information on guidelines to entering HSC can be found at  www.hsc.mb.ca.

Ordering Your Bleeding Disorders Medication  
Currently there will be no changes to how members order or pick up their product from CBS. You should expect to order the same amount of product as usual. 

The Manitoba Bleeding Disorders Program is asking members for more notice when ordering your product. Please place an order when you have two weeks of product left at home. This will help avoid any unforeseen delays.  

Reliable COVID-19 Information
Many of us use the internet and social media feeds to seek and share information. Please watch our Facebook page @HemophiliaMB and website www.hemophiliamb.ca for updates. Bleeding disorders questions are best answered by the Manitoba Bleeding Disorders Program. Here are some links to reliable information:

Canadian Hemophilia Society - Message to the Canadian Bleeding Disorder Community Related to COVID-19
World Federation of Hemophilia – Practical Recommendations for Hemophilia Patients
COVID-19 information from the Government of Canada and the Government of Manitoba.

CHS & CHS-MC
CHS and CHS-MC staff continue to work for you! Staff have been working from home. Please contact us if we can be of help to you! 

Economic Help
Winnipeg Harvest – How to Access Food
Canada’s COVID-19 Economic Response Plan

Please practice social distancing! 

 

CHS-MC Annual General Meeting (AGM) - New Date & Delivery 

The AGM this year will be held on Tuesday April 28th at 6:00 pm. This meeting will be a video conference via Zoom. Chapter committees have been using Zoom for meetings for the past year. We will send out the log-in information to members a week before the meeting. You can access this meeting via your computer, tablet or phone. If you want to test your ability to log into Zoom, contact the office and we will set up a test meeting so you can try it in advance of April 28th.
The meeting will include a presentation of the Annual Report. We will review the 2019 Financial Statements and the 2020 budget. We will be electing a new slate of officers and appoint an auditor for the ensuing year.

Board Elections
CHS-MC wants to be representative of all the different types of members that we serve. We currently need representation on the Board of Directors from Chapter families with children in the pediatric program, members with Von Willebrand Disease and women with inherited bleeding disorders. We are always looking for new Board members to keep the organization relevant with new ideas and fresh perspectives.
 
CHS-MC is a grass-roots, volunteer run organization. We rely on volunteers to sit on the Board of Directors as well as the Chapter’s committees. Have you ever thought of running for a position? If you worry that you don’t have any experience being a Board Director, we provide support and training to develop our Board members. Your commitment is to attend the Board meetings (about five times a year) and we ask Board members to participate on the committee of their choice. The committee you choose may reflect your particular bleeding disorder, interest, or time availability. We offer new Directors some time to learn about all of our working committees and what they do before requiring a choice be made. Please have a look at Board Volunteer Job Descriptions for more information about the different roles. Please call the office or email us if you have any questions.
 
Nominations & Proxies
Nominations must be into the office by April 4th. Please download a 2020 Board of Directors Nomination Form and have it sent into the Chapter office by April 4th. If you would like us to mail you a form, please contact the office.
 
Proxy forms must be into the office by Wednesday, April 17th. Please download a 2020 Proxy Form and have it into the office by April 17th. If you would like us to mail a form to you, please contact the office.

Board Positions 

Program Cancellations


The following bleeding disorders programs have been cancelled: 

CHS Inhibitor Workshop
CHS CodeRouge 2020 3rd Canadian conference on bleeding disorders in women
CHS-MC Education Day
CHS-MC Healthy Ageing Workshop
WFH - World Congress of Hemophilia 2020

We will wait and work with Luther Village to determine if we can hold Family Camp. We won’t open registration until we are reasonably sure we can move forward with this program and other summer and fall programs. We hope to reschedule Education Day!

Thank you Chapter Update Sponsors! 

 

 
Copyright © 2020 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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