CHS-MC Chapter Update June 6, 2018
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In this Issue:

Office Move - JTG Camping - Meet Riley  - Twinning Award - Goldeyes Game - S.A.F.E. Toolkit - Giving Challenge - Stitches Doll Project

The Office Move is Done!   

May 31st was the last day for the Chapter office at 944 Portage Avenue. We thank Deluca’s for being great landlords for the past 12 years. The transition to a virtual office is complete. We have a storage locker that holds our archived material and fundraising supplies. The new mailing address for the office is:

Suite 324
120-1400 Ellice Ave.
Winnipeg, MB R3G 0J1
Our phone number remains the same (204.775.8625) and is now a cell phone so you can leave a text. Please let us know who you are the first time you text! We no longer have a fax line or a toll-free line.
Thank you to Bruce and Kathy Cameron, John Rogasky, Genevieve Jones, Mario and Dominic Bieringer, Tony and Gail Tavares, Shane, Eric and Hayden Keilback for all your help with the move!

Just the Guys Camping Trip

There are a few spots left!
Jake Figler and Eric Keilback invite Chapter men with bleeding disorders between the ages of 16 and 35 to join them in Riding Mountain National Park June 22nd to June 24th. The Youth Committee has booked three oTENTiks for the weekend and will provide transportation to the park. Enjoy the beauty of Riding Mountain and the activities the park has to offer. MBDP physiotherapist, Greig Blamey will be joining the group for an education session.
Email the Chapter office at for registration information.
Curious about oTENTiks? It's "glamping" at its finest! Parks Canada oTENTIk

Meet Riley!

My name is Riley Nichol and I am a Hemophilia A mild.  I am 15 years old, in grade 10 and I love sports.  My favorite class in school is gym, where I take the opportunity to try all different types of sports.  Over the years I have even played volleyball and basketball for the school.  Our volleyball teams did pretty good.  Our basketball team however never won a game, but we had fun.
Outside of school, I maintain both a summer and winter sport.  During the summer I play baseball.  I have been playing community league baseball with the Charleswood Goldeyes for 8 years, both in either “A” or “AA” levels and I have been part of the teams who have won the city championships 2 times.  My favorite positions are catcher, pitcher and 3rd base.  I have not had any major injuries with baseball, but keep in mind that I wear safety equipment such as helmets, catcher chest protector, and shin pads. I also always carry a first aid kit and a breakable cold pack in my sports bag. Read More 

Twinning Partnership Accepts Award


The CHS-MC/Mongolia Twinning partnership was awarded the 2017 Hemophilia Organizational Twins of the Year the afternoon of May 23rd. It was wonderful to have so many people from the Twinning project in Glasgow to accept the award. We miss the committee members from both groups who couldn’t be here (Alex & Nick Czehryn from MB) but we certainly share the award with them!!

The Congress was an excellent opportunity for the the two groups to have face-to-face meetings with Sachi Satapathy, the WFH Regional Manager for South Asia and East Asia. This allowed the two groups to go over the Action Plan for 2018 which includes a trip to Manitoba! The Twinning team from Manitoba hopes to host 3 members from the Mongolia National Hemophilia Association (MNHA) in July so that we can take them out to Family Camp for a day. It is a goal of the MNHA to be able to offer a camp program in Mongolia.

Goldeyes Game Sunday July 15th

The Winnipeg Goldeyes gifted 40 tickets to the Chapter for the 1:00 pm game on Sunday, July 15th. The seats are part of their Community Zone program. Civic minded companies supplement the cost of the tickets so that inner-city programs and charities can offer tickets to their community. It’s always fun to watch the game with other Chapter members! If you would like some tickets, please email the office or call 204.775.8625. The tickets are first come - first served.

S.A.F.E Toolkit

One of the consistent messages at the World Congress of Hemophilia was, "you have to be your own advocate". We have all heard this before, but what exactly does that mean? The Manitoba Institute for Patient Safety has developed the Self Advocacy Toolkit for Everyone (S.A.F.E.) to help you become your own best advocate. The kit guides you through the steps to becoming an active partner in your care so that you know what your patient rights and responsibilities are. Please visit S.A.F.E. 


CanadaHelps announces that The Great Canadian Giving Challenge is here! For the entire month of June, every $1 you donate (minimum $3 donation) to the Chapter through  or qualifies the Chapter to win $10,000! Just enter Canadian Hemophilia Society, Manitoba Chapter and both links will take you to our donation pages. The more you give, the more chances for us to win! Help us continue to provide parking reimbursement and the other Member Services that support our members.

The Chapter Education Committee is preparing seminars in the fall for women in our community living with inherited bleeding disorders.Kathy Gerus-Darbison explains the Stitches Doll Project, giving women a safe place to voice their feelings about specific issues affecting their lives by asking: if your doll could talk, what would she say? This workshop was very popular at WFH World Congress.

Dates to Watch! 

June 22nd to 24th - Just the Guys Camping Trip
July 15 to 22nd - Family Camp 

July 18th to 25th - Visit from Twinning Partners from Mongolia

Thank you Chapter Update Sponsors

Copyright © 2018 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.

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