CHS-MC Chapter Update October 31, 2018
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In this Issue:

Patient Survey, Grey Cup Pool, Carrier Testing, R4YC, Volunteer Appreciation, Interesting On-line,  Hemophilia Today

CHS-MC Member Patient Satisfaction Survey

The Chapter is inviting you, as a client of the Manitoba Bleeding Disorders Program (the Program), to participate in a survey. Patient Survey
The Manitoba Bleeding Disorders Program was formally established as a provincial program in 2006 to provide quality comprehensive care to people diagnosed with congenital bleeding disorders. The Program consists of hematologists, nurses, physiotherapists and a social worker for both adults and children. The objective of this survey is to understand patients' experiences with the care and support they receive from the Program.
For the first time, we are inviting (female) carriers of bleeding disorders, symptomatic and non-symptomatic, to participate. If you are both a carrier AND a parent of a minor child with a bleeding disorder, you can complete this survey TWICE- once as a parent and once as a carrier.
If you require a printed copy or a second printed copy of the survey, please email or call 204.775.8625 and we will gladly mail it to you!

2018 Grey Cup Pool

Many thanks to all the Chapter members who have taken books of Grey Cup Pool tickets. Sales from the two pools of 900 tickets funds Member Services for the following year. The Chapter funds parking at HSC, rural travel and accommodation allowance, product delivery and so much more. Check out our Member Services
Chapter member Linda Laxdal sold 84 tickets in Gimli at the Super A Foods and at Sobeys! We also have two tables scheduled at HSC for Friday November 16th and 23rd. We have 260 tickets left in the second pool. If you can take some, it would be greatly appreciated!

If you are going to a Grey Cup party, they make watching the game more fun!

Carrier Testing for Adult Women; First Steps

The Women and Bleeding Disorders seminar  held on October 1st raised questions about how women can access the adult side of the Manitoba Bleeding Disorders Program. For this segment, here is some information on the process to access carrier testing through the Manitoba Bleeding Disorders Program.

Adult women with family members with hemophilia, may want to know if they are carriers of hemophilia. To begin the process, you need to ask your Primary Care Provider for a referral to the Manitoba Bleeding Disorders Program. A formal referral to the Program gives them a medical professional to communicate with, and also creates a formal chart in CancerCare Manitoba for your records.

It is important to tell your Primary Care Provider to address the referral to the Bleeding Disorders Program and send it to the Referrals Office at CancerCare Manitoba. Please tell the medical professional the referral needs to say ‘family history of hemophilia, and potential carrier’. If you have had any prior bleeding issues, this is the time to highlight those. Once the Manitoba Bleeding Disorders Program has received the referral, they will contact you to arrange a clinic appointment.

Run 4 Your Cause – A Great Day!


Thank you to Jason Oltrop for bringing this healthy living fundraiser to the Chapter. We were so happy to have 17 runners identify the Chapter as their charity of choice! Thank you to Tony Tavares for volunteering to help with the display table and the participant photos.
We’re looking forward to next year!

Volunteer Appreciation

The Chapter Volunteer Committee hosted the annual Volunteer Appreciation party at Academy Lanes on Sunday, October 21st. It was a great afternoon of bowling, laughing, enjoying pizza and the great company. There is nothing quite like 5 pin bowling to bring out the friendly competitive spirit in our members!
We were so happy to see new people come out and to see the new friendships that were made.

Interesting things On-line

Let’s Talk Period aims to increase awareness of the signs and symptoms of bleeding disorders. As many as 1 in 1000 individuals may be suffering from a bleeding disorder, but many of these may not understand if their bleeding is normal or abnormal and therefore do not seek help. Through her internationally recognized research program at Queen’s University, Dr. James, Hematologist at Kingston General Hospital, and her team have developed a self-administered bleeding assessment tool (Self- BAT) that will help inform people about their bleeding and guide them toward the help they need.

Hemophilia Health lists the recombinant Hemophilia A products currently available in Canada.  

World Federation of Hemophilia has an E-Learning section. This link will take to you to the section that lists the drugs (chemical and herbal) that can cause bleeding.

2018 CHS-MC/CLF-MR Golf Photos are on the Chapter website!

Hemophilia Today

Hot off the press: the November edition of “Hemophilia Today”! Fantastic issue full of great information.

Congratulations to Chapter member Chris Silver on winning the CHS bursary.

There is an excellent article by Deni and Milena Pirnat talking about hosting our friend Mandaa, from Mongolia, as part of the Chapter's  WFH Twinning project.

Dates to Watch! 

November 30th, 2018  - Deadline for the Member Patient Survey
March 2nd, 2019 - Gala Dinner of Culinary Inspirations

Thank you Chapter Update Sponsors

Copyright © 2018 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.

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