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CHS-MC Chapter Update December 17, 2020
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In this Issue:


President's Letter, Holiday Hours, Netrunner Tournament, CHS James Kreppner Scholarship, Did you know?
CHS Greeting 

President's Letter to the Membership

Dear Members,

One really challenging year is hopefully behind us. I am happy to inform you that the Chapter was able to put on so many activities despite the many challenges that we have had to overcome this year due to the COVID-19 pandemic. I won’t be able to list them all here but will mention a few. In the beginning of the year, our Gala Committee was able to organize the Gala Dinner; our major fundraiser was a very successful event! Great job Gala Committee! Unfortunately, in the summer we had to cancel Family Camp but we helped CHS organize a virtual camp and also organized a gathering of our camp group at the end of August. Thank you Christine for designing the escape room for our virtual camp and organizing a visit with campers in late August!

Through the year, the Twinning Committee worked closely with the Serbian Hemophilia Society to help them execute their first national survey, worked with their women with bleeding disorders group and delivered a successful webinar. Great job Twinning committee! Our help extended to the Bosnian society as well, where help was needed in advocacy efforts to get Hemlibra for patients with inhibitors. It was a successful effort!

At the end of the year we also had a new, innovative and successful fundraiser: Netrunner, an online card game event organized by Eric Keilback, which opened us to the international community of gaming, and showed that our young generation is ready to be involved and is passionate about our cause. Great job Eric and to all that supported it!

The volunteer appreciation event this year was amazing, fun and relaxing! Big thanks go to Volunteer Committee! Also our Education Committee and Aging Committee organized three successful webinars. Thank you! Our Women’s group and Aging Committee met and laid out ambitious action plans for next year! Throughout the year, our Communication Committee and the Board have been working on giving our website a facelift and also worked on the strategic communication plan, all exciting efforts that will show results next year!

One major challenge our community has faced during the pandemic has been the temporary loss of our treatment room at Cancer Care, which has been appropriated by Cancer Care as a result of the increased strain and need caused by coronavirus. We reached out to Cancer Care to ensure our members have access to appropriate space. We are working hard to find the best solutions and minimize the impact on our community. We will be watching closely and advocating that quality of care for patients is maintained and is in line with the Standards of Care.

This is a year to remember and focus on all our successes. Although many challenges came our way we adjusted successfully to the situation because we have an amazing group of passionate volunteers who have worked very hard to overcome these obstacles. We are a resilient and creative group and we will continue to work passionately on delivering the best support and advocacy for people with bleeding disorders in Manitoba. If in need, always feel free to reach out to us as we are here to serve you. I hope to see you in person in the next year and I am wishing you and your family a safe and bleed free year, and Happy Holidays!

Sincerely,
Milena Pirnat
President, CHS-MC 

Holiday Hours to Note: 
    

Chapter Office
The office will be closed from December 21st to January 4th. If you require service during this time, we will be checking emails info@hemophiliamb.ca and you can text the Chapter phone number 204.775.8625.

CBS- Product Pick-up
777 William Avenue
Pick up hours at CBS are Monday through Friday from 10 am to 6 pm. 
Pick up is not available December 25th or January 1st.
The phone number for Blood Product Management is 204.789.1034 
Courier Service 
Courier service is closed December 24, 25, 28,31 and January 1st.

Paging Instructions 
Access to bleeding disorders help is available in the event that there isn’t any nursing coverage, on evenings, weekends and holidays, through HSC paging after regular Manitoba Bleeding Disorders Program work hours. A hematologist can be contacted 24 hours a day, seven days a week. This help should be accessed in the event of an emergency and for support with home management. Instructions & Paging Numbers
 

CHS-MC Netrunner Tournament A Success!     

Thank you to everyone who volunteered, played and donated to the Netrunner Tournament on December 5th! It was so much fun to watch the live stream on Twitch. Thank you to NISEI and the Netrunner community for donating the prizes. Thank you Eric Keilback for bringing this fundraiser to the Chapter.

CHS James Kreppner Memorial Scholarship & Bursary


The CHS James Kreppner Memorial Scholarship and Bursary Program is a posthumous tribute to James Kreppner, a long-time volunteer and member of the CHS Board of Directors, and a highly respected and exemplary activist. He passed away in 2009 from complications related to HIV and hepatitis C. The CHS James Kreppner Scholarship and Bursary Program is an ongoing tribute to James’ dedication, intelligence and commitment to the CHS and community service.

The program is open to Canadians with inherited bleeding disorders: hemophilia (factor VIII or IX), von Willebrand disease, rare factor deficiencies, platelet function disorders; carriers, and those who contracted hepatitis C or HIV through a blood transfusion. Spouses and children of the people mentioned above may also apply.

Application forms for each program, which include all the criteria, are available here:
https://bit.ly/39ZXK7K


There are sources of information specifically for people with inherited bleeding disorders. CHS has COVID-19 Updates and the World Federation of Hemophilia has COVID-19 Communications

The Manitoba Bleeding Disorders Program (MBDP) is encouraging patients to stick to their prophylaxis regimen. MBDP has told the Chapter that if you or a family member has COVID-19 and are having trouble with your prophylaxis, please contact Health Links for instructions and follow public health guidelines. 204-788-8200 or    1-888-315-9257. If you need to be seen for a bleeding issue, you should go to the hospital and take all the appropriate precautions.

Would You Consider a Gift to CHS-MC?     

We would like to encourage our supporters and members to consider a gift that suits your budget to help maintain programs and services for Manitobans managing inherited bleeding disorders. We welcome you to visit Member Services where you will find the direct services and programs we offer. Donations dated before January 1st will be receipted for December 2020.

Gift through CanadaHelps.ca Support Us
Download a Donation Form
E-transfer your gift to info@hemophiliamb.ca 

Thank you Chapter Update Sponsors! 

 
Copyright © 2020 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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