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CHS-MC Chapter Update May 20, 2021
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In this Issue:


Arthritis Webinar, WFH Global Youth Leadership Training, Sports Bursary 2021, Run4YourCause, Current/Pipeline Coagulation Products, PPE Kits

Aging and Arthritis; Types - Symptoms - Therapies




Join us for this webinar on May 27th by Rheumatologist, Dr. Snezana Barac, on aging and arthritis. Dr. Barac will be talking about the different types of arthritis, symptoms and treatments. She will be talking about the complications of arthritis with a bleeding disorder. All CHS members are welcome to join us! Please register at http://ow.ly/gzt650EM6IB

WFH Global Youth Leadership Training



This is a wonderful opportunity to develop skills and meet people with inherited bleeding disorders from around the world! 
New Global Youth Leadership Training! Learn more about youth-led initiatives in international bleeding disorders communities. Share your experiences, build your network amongst future leaders, and catch updates on latest hemophilia topics trending today. Learn more and register now: http://ow.ly/fZQg50EPjJi

 



The CHS-MC Sports Bursary program promotes a healthy lifestyle for children and youth with bleeding disorders through safe physical activities. Chapter youth, 17 years or younger, with a moderate or severe bleeding disorder can apply. 

New for 2021

COVID-19 has made it difficult for Chapter children to participate in organized sports. The Chapter's Member Services Committee is offering 10 - $100 bursaries that can be used towards the purchase of a bike for an eligible child. To apply for the bursary, please fill out the Sports Bursary form and send it to the Chapter Office for pre-approval. Approved applicants will then send the receipt for the bike purchase to the office to receive the bursary. 

The $100 Sports Bursary for a bike purchase will be available until September 1st or until all the bursaries are filled.

Virtual Run4YourCause 2021

CHS-MC is participating in the 2021 Run4YourCause! This is a healthy living event that you can run or walk for your charity! Here’s how it works: 
You register for a Virtual Run/Walk
(Choose from 3k, 5k or 10k).
Choose your Cause from our list of partners and Fundraise if you’re able.
You will receive an email from Runkeeper, inviting you to use their App. This is optional, you can use whatever tracking system you’re comfortable with.
At the end of your Run/Walk, take a screen shot of your results and a picture of you wearing your medal.
Sign in to Race Roster, enter your time and send your screen shot.
Share your picture, Congratulations!
Information and registration: http://ow.ly/8v6o50EONjL
We hope our families will sign up for the 2021 R4YC Virtual Challenge. This is a great way to engage in Social Solidarity while practicing Physical Distancing!

CHS Contact

Updated charts for products in the pipeline have been uploaded on the CHS website. The CHS publishes four charts, one each for clotting factor concentrates, inhibitor products, non‐factor coagulation products that may prove efficacious in both inhibitor and non‐inhibitor patients, and gene therapy, in order to help everyone stay informed of their progress through clinical trials and regulatory approval.

CLICK HERE to access the pipeline charts.

Also on the CHS website, you can access charts listing all the products currently available to patients. These charts include the following: recombinant factor VIII, factor VIII & von Willebrand factor (plasma-derived), recombinant factor IX, factor IX (plasma-derived), recombinant von Willebrand factor, products for patients with inhibitors, and products to treat rare factor deficiencies.

CLICK HERE to access the charts for current coagulation products.

PPE Kits Still Available To Order



How are your supplies holding up? We have hand sanitizer and anti-bacterial soap in the office and are happy to order masks for you and your family. Members can order at http://ow.ly/eRTd50Euh3W

Thank you Chapter Update Sponsors! 

 
Copyright © 2021 Canadian Hemophilia Society, Manitoba Chapter, All rights reserved.


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