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DNews April 2016
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"Victorian schools not inclusive"
A review led by former Disability Discrimination Commissioner Graeme Innes has found that Victorian schools lack a "culture of inclusion." It said evidence that some go so far as to "explicitly or subtly" refuse to enrol students with disabilities.

Down Syndrome Victoria had three representatives who gave evidence at the review along with two parents who have a child with Down syndrome at a mainstream school.  The opportunity to meet with Graeme Innes and to be able to give an understanding of the difficulties that parents face at some schools was fantastic.  There is still a lot of work to be done, but the recognition of the issue that Victorian schools lacked a "culture of inclusion", is a good start. 

See the full story at this link.
DSISS Becomes the Education Support Service
The Down Syndrome Inclusion Support Service has had a name change to Education Support Service (ESS).
 
It is felt that this more accurately reflects the intention of the support and will make the service easier to locate on the website for both families and schools.
 
2016 World Down Syndrome Day
Owen and Michael Roberts attend Boroondara Park Primary School in North Balwyn, where they organized a Lots of Socks fundraiser for World Down Syndrome day on 21st March. 

Owen is in Grade 6 this year, his final year at the school. Both boys had to speak and promote this day in front of teachers, parents, and over 600 children at the assembly. Michael is in grade 5 and was the driving force behind this great day. Everyone in Michael’s classroom made posters and put them up around the school. As the day drew closer Michael reminded the children over the P.A. system to remember their crazy socks.

On the 21st there were lots of  socks throughout the school, and even the teachers got in on the fun, trying to outdo each other.

Michael was hoping to raise around $100 and was pleasantly surprised when he and Owen managed to raise just over $500.
 
The following is the presentation they gave to the assembly:
 
Michael:   Hello, l'm Michael and this is my brother Owen. l'm here to tell you that on March 21st it will be a special day for Down Syndrome. Since 2006, all around the world people recognise this day as WORLD DOWN SYNDROME AWARENESS DAY. We're here to let you know how special people from all around the world are that have a disability.
 
Owen:   I have Down syndrome and I am in grade 6, my final year here. We thought we could raise some money for the Down Syndrome Association. They helped my Mum and Dad from when I was born and they help other families that have a child with Down syndrome.
 
Thank you to Owen and Michael Roberts and Boorondoora Primary school for their support on World Down Syndrome Day, and their fundraising efforts. 
 
A big thank you also goes out to Darcy Moran and the Park Hill Primary School for raising over $800 for the Lots of Socks campaign.
Dennis McGuire Speaking Tour
May 14th - Sydney
World renowned co-author of Mental Wellness in adults with Down syndrome, Dennis McGuire, will be sharing his knowledge at this workshop, from more than 30 years of practice in working with over 6000 families. This is a rare opportunity for Australian families to hear from Dennis, and the workshop is proudly presented by Down Syndrome NSW. Adult Support Manager at Down Syndrome Victoria, Kerry Hands, will be attending.

Victorian parents who would like to attend need to register as soon as possible and can receive the same member discount rate as DSNSW members.

See the flyer here for more details and here to book.
Club 21 Melbourne
At the beginning of March, Club 21 had a planning day to brainstorm ideas for the year ahead. Activity ideas varied greatly across an array of hobbies and interests some ideas included movie nights, sporting events, picnics at the park or beach or river and cooking classes. There were lots of ideas and we definitely have a great range of activities to choose from this year.

Family Fun Day was a whole lot of fun for Club 21. Members volunteered on the day to sell raffle tickets and host the end of day disco – so much dancing! In between volunteering, we enjoyed a delicious BBQ lunch and the dance workshop facilitated by emotion.21.

If you would like to join in the fun at Club 21 Melbourne or Geelong please contact Casey, caseyt@dsav.asn.au or Kerry kerryh@dsav.asn.au
Early Days Support Workshop Two
Friday 22nd April

This FREE Workshop for parents of children with Down syndrome, aged around 18 months to 5 years might be of interest to you.....

TOPICS INCLUDE:
Parenting - the juggling act
Self-care 
Developing a vision
Utilising Better Start or NDIS Funding
Early intervention - working as a team
Planning and goal setting

VENUE: DSV's Office in Abbotsford
DATE: Friday 22nd April 2016
TIME: 10am to 1pm
INCLUDES: Morning tea
BOOKINGS ESSENTIAL: ph: 9486 9600 ext: 208 or email: familysupport@dsav.asn.au
 
Please note: This workshop is not suitable for children.
NDIS News
Our work as part of the NDISandME project, we are busy sharing information with our families as Victoria moves to expand the NDIS initially into the North East Melbourne, Central Highlands and Loddon areas in coming months.
 
NDIS in North East Melbourne (NEMA)
It Is expected to take 12 months for all eligible participants living in the local government areas of Darebin, Banyule, Nillumbik, Whittlesea and Yarra, to transition into the NDIS.  If you or your son/daughter are not currently receiving any funded disability support you can call the NDIS after 1 July on 1800 800 110, to organise an eligibility assessment. See this link for more information.
 
The following indicative dates have been announced as the transitioning phase for NEMA-NDIS. 
 
2016
From July                    Commonwealth Programs – Young People in Residential Age Care and Home Care
July-August                 Waitlists - DSR and ECIS
August – November  Shared Supported Accommodation
October – December Early Childhood Intervention Services
                                      Student Transport
                                      Attendant Care
December                    Futures for Young Adults
 
2016-2017
December – May  Community/Facility Respite
                                 Flexible Support
                                 Outreach
                                 Behaviour Intervention
                                 Case Management
                                 Recreation
                                 Independent Living Training
May – June            Mental Health
May – June            Home and Community Care
                                                 
We are awaiting confirmation for when Better Start and Helping Children with Autism packages, will transition to the NDIS in NEMA.
 
The Brotherhood of St Laurence has been appointed to assist people with local coordination support. Likewise, Latrobe Community Health will be providing this support in the Central Highlands and Intereach in Loddon.  This support is due to begin from 1 July 2016. Look out for further information about their work in future DNews emails.
 
Upcoming NDISandME information sessions                       
The key to a successful NDIS experience includes understanding processes and building the confidence to make decisions and negotiate supports which will help achieve a good future.  Our NDISandME information sessions are well informed, independent and objective and we encourage you to consider participating. 

Introduction to the NDIS (Session 1)
Friday 22 April 2016 from 7.00pm
Function Room 3, Knox Civic Centre, 511 Burwood Highway, WANTIRNA SOUTH
RSVP 18/04/2016 elizabethm@dsav.asn.au 
Friday 29 April 2016 from 10am
NG Haynes Pre-School, 10 Tamara Street, WANTIRNA SOUTH
RSVP 18/04/2016 elizabethm@dsav.asn.au
 
Preparing to Plan for the NDIS (Session 2)
Sunday 8 May 2016 from 6.30
The National Hotel
RSVP 2/05/2016 Wendy charingal.park@bigpond.com
Monday 9 May 2016 from 6.30
Ballarat Yacht Club, Wendoouree Parade, BALLARAT
RSVP 2/05/2016, Rebecca rebeccaquinn@hotmail.com
 
Over time NDIS and Me sessions will be held in various locations across Victoria. All will be advertised via DNews and if you haven’t already done so, register as an NDISandME member – email ndissupport@dsav.asn.au 
 
NDIS Intellectual Disability Reference Group
Last year the NDIS set up an Intellectual Disability Reference Group to advise their Independent Advisory Council on the effectiveness of the Scheme design and how it could better engage and connect with people with intellectual disability to enable them to live a good life. To find out more, watch the video at this link.
Bumpers by the Bay

FX-FJ Holden Club of Australia INC - Melbourne Chapter is holding a Bumpers by the Bay day son Sunday 16th May, with all monies raised going to Down Syndrome Victoria. This is a great opportunity to see some fantastic classic cars, listen to some live bands, enjoy some rock and roll dancing, and sample some delicious food, all while supporting DSV. 

Entry: Gold coin donation. 

Click here for full details.

Call out for My Voice submissions

Would you like to share your achievements with our national Down Syndrome community? Here’s your chance!

We are looking for submissions to the ‘My Voice’ section of Voice, our members’ journal which is published three times a year. My Voice is a section devoted to letting you tell your story – perhaps you’ve just started a new job, or have attended an awesome DSV event, or have a special occasion or triumph that you’d like to share. We’d love to hear it!

Simply send a short paragraph about your news and a high resolution photo to accompany it to voice@downsyndrome.org.au, and we’ll see if we can include it in the next edition of My Voice.

For further information, please contact Stephanie Papaleo.
Library Books Reminder

 
If you have borrowed a book from our library, please can we request that you return it as soon as possible. Thank you!
 
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