DNews August 2016
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Match Day Experience

Includes adult entry. Don't miss out on this wonderful opportunity - to be involved email and include your child's name and age, sibling details if they will be participating, and parents details who will be attending so we can ensure appropriate ticket allocation.
Events and Training

For more information and details about the workshops or to RSVP, email: or phone 1300 658 873 and note any dietary needs (vegetarian, gluten free etc)
Next sessions for learning about the National Disability Insurance Scheme and how best to prepare for this transition are happening for people living in council areas of Hobsons Bay, Wyndham, Maribyrnong and Moonee Valley

Session 1 – Introduction to the NDIS
Wednesday 17 August 2016  
6-00pm – 8.30pm
 Anglers Tavern Function Room
2 Raleigh Road, Maribyrnong

For young families living in Council areas of Darebin, Banyule, Nillumbik, Whittlesea

Session 3 – Becoming a Savvy Consumer
Thursday 18 August 2016  
from 10.00am
EPIC Early Intervention Centre, RMIT Bundoora Campus  

Information about the National Disability Insurance Scheme is now available in ten community languages:

Arabic, Chinese (simplified and traditional), Filipino (Tagalog), Greek, Hindi, Italian, Macedonian, Samoan, Vietnamese
More translations will be available shortly

Click on the link

Please RSVP to by Thursday 1st September
Darcy Fisher joins in with Langwarrin FC
What a lovely story of inclusion from the Langwarrin Junior Football Club told by Julie, Darcy's mum:

"It all started last year when Darcy's brother's football team's coach asked me if Darcy would like to run the boys out one day. I told him he would love it and the coach then took Darcy into the rooms and gave him his own jumper and so began Darcy being the boys mascot.

Today was the last game of this season and Darcy has been running the boys out every week for 2 years now. He goes straight to the rooms when we get to the footy and warms up with the boys and then charges out in the lead when they run out. He runs out with them and comes off the field just before they start to play. After the game he's straight into to rooms to either sing the song or just sit with boys.

Last year they won their grand final and the club had organised for Darcy to receive a premiership medallion just like all the other boys. Darcy was over the moon as were all the boys. Darcy is their little mate and the bond a lot of them have with him is amazing.
They all look out for him and make sure he's right when they are running out.

Last year he also received a participation trophy at the boys presentation night and when the boys were signing each other's premiership guernseys they all signed Darcy's as well and some had him sign theirs."

Save the Dates!

The 2016 StepUP for Down syndrome is coming soon... With walks to be held across Australia in the month of October and Victoria will be hosting 4 events and we are looking forward to you joining us to make this year’s StepUP a great success.
Dates and locations:
StepUP! for Down Syndrome – Melbourne | Sunday 9 October
StepUP! for Down Syndrome – Bendigo | Sunday 16 October
StepUP! for Down Syndrome – Wodonga | Sunday 16 October
StepUP! for Down Syndrome – Geelong | Saturday 22 October

The online registration will be available very soon, we will  forward you the links within the next week.

If you need more information about StepUP please contact
Run Melbourne 2016
We had four runners raising money for Down Syndrome Victoria at this year's Run Melbourne. Thanks so much to Susie Carrick, Hilary Harper, Saraland Nguyen and Kate Versarce for running for DSV and raising an amazing $3125.95 for us altogether! Above is a photo of Susie (on the right) and her running mate at the finish line. Below is Susie, Lucas (who inspired Susie to run for DSV), and his mum Kate.
Club 21 Melbourne

July was jam packed with three activities. We kicked off July with a cooking class, creating delicious English muffin pizzas and bake-free desserts. This activity was free to members thanks to volunteer Madison who held a fundraiser at her work to cover the cost of this activity (thanks Madison!).

Our second activity for July was a workshop which was attend by eighteen Club 21 members and 25 parents/ carers. Two concurrent sessions ran one for Parents/carers and one for Club 21 members and focused on healthy relationships and sexuality. We touched on a several important topics facing families and their adult children with Down syndrome and will be looking towards continuing to offer opportunities to support the healthy development of adults with Down syndrome.

To wrap up July, Club 21 were again hosted by Kez and her family in Ballarat. This time we were treated to tickets to see a basketball game, Ballarat Miners vs Melbourne Tigers. Unfortunately Melbourne lost but we still managed to have an awesome time – thanks so much for the free tickets!

If you are an adult with Down syndrome, over the age of 18 and would like to join Club 21 please email Casey, Club 21 Coordinator or Kerry, Adult Support Manager
Family Support News

Babies update….
So far this year we have heard from 22 new families… welcome to the world little ones!
Attention new parents!! 
Early Days Support Workshop - One

Down Syndrome Victoria will be hosting an evening gathering of parents with a young baby with Down syndrome on:
Monday 5th Sept - 6.15pm to  9:15pm
Down Syndrome Victoria’s Office in Abbotsford

RSVP’s essential – by 1st Sept
The evening will include:
  • an introduction to Down Syndrome Victoria  and our services
  • exploring  the potential of people with Down syndrome
  • practical things to consider in the early days including information on services & supports
  • a chance to browse our library of resources
  • supper will be provided (please advise any specific dietary requirements)
  • the opportunity to meet and get to know some other families, and
  • time to reflect on the journey so far and share ideas and experiences.
This session is part of a suite of workshops that are designed to support parents and the family unit. The intent of Workshop One is to bring parents of babies with Down syndrome into one space in which you can not only access information, but can meet, share and unite with others in a similar situation. The sessions are relaxed and quite informal to allow for the sharing of experiences and learning from others.
Save the date – DSV comes 2U Warragul
Monday 17th October - 6pm onwards catch up with families at a local pub TBC
Tuesday 18th October – 9:30am to 2:30pm information workshops for families including a school session from one of our Education Consultants and an NDIS update (Venue and final topics TBC)
Expressions of interest to attend –

Volunteer Induction Night

Wednesday 17th August, 6.30-8pm

DSV Offices, 18/71 Victoria Crescent, Abbotsford, 3067
Parking Available

Join our fantastic team of volunteers!

We’re recruiting for volunteers for our two yearly events, Step Up for Down syndrome in October and Family Fun Day in March.*  Volunteering is a way to connect with the local community as well as provide a pathway to personal and skills development. It is open to people of all ages, and individuals with a disability are encouraged to apply.
Are you interested, or do you know someone who might be? RSVP to attend the induction night to Volunteer Coordinator Emily Bruce at by Monday 15th August.
*Please note we are not currently recruiting for Club 21 volunteers
MyTime News
For those of you already involved in a MyTime group, I’m sure you are aware of the value of catching up with like minded people and sharing information and experiences in a supportive environment. For others who aren’t involved in a group, who have children 0 – 16 years, you may like to see if there is a group near you, or contact Kerry Hands  if there is a need in your area. Here are the current groups around Victoria:

Good news for the Black Rock group who now have a Play helper. Christine will start with the group on Thursday 11th August. She will provide play activities for the children while parents get together.

A Facilitator is needed for the Altona North group, commencing October 2016. If you have skills in group facilitation and lived experience of disability, please contact or phone 9486 9600 ext 202. This is a paid role.
Looking ahead, leaving school – planning for the transition from school to adult life
Calling all parents of year 9, 10 and 11 students. Down Syndrome Victoria will be holding a workshop to assist you to navigate this next phase in your young person’s life: what are the options, what can you do now, what support is available. The workshop will be at our Abbotsford office  (Parking available at these times and light meal included).
Please send expressions of interest to for one of the following  times:
Thursday 3rd November 6.00pm to 9.30pm or Friday 4th November 10.00am to 1.30pm

Call out for My Voice submissions

Would you like to share your achievements with our national Down Syndrome community? Here’s your chance!

We are looking for submissions to the ‘My Voice’ section of Voice, our members’ journal which is published three times a year. My Voice is a section devoted to letting you tell your story – perhaps you’ve just started a new job, or have attended an awesome DSV event, or have a special occasion or triumph that you’d like to share. We’d love to hear it!

Simply send a short paragraph about your news and a high resolution photo to accompany it to, and we’ll see if we can include it in the next edition of My Voice.

For further information, please contacStephanie Papaleo.
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