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DNews - Down Syndrome Victoria
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DNews March 2017

Family Fun Day - Sunday March 19

 


This event is free for Down Syndrome Victoria members. $15 for non-members.
Not a member?  Click here to renew or subscribe.

 


World Down Syndrome Day - March 21



Start fundraising for World Down Syndrome Day

Help Down Syndrome Victoria provide the services, programs and support to ensure individuals with Down syndrome actively participate within the community and gain greater independence by fundraising as part of World Down Syndrome Day.  

Create an event you'd like to run (ie: morning tea, lots of socks, BBQ)
Start a fundraising page for yourself, your friends or your office.
Share your page!

Share your online fundraising page with your friends, family and work mates by email, Facebook or Twitter. This is important, because this is how you get support for your activity. Your friends can sponsor you and leave messages of support. Your donors will receive their donation receipt immediately for donating to Down Syndrome Victoria.

Thank you for your support of World Down Syndrome Day 2017!

Click here to participate.


Step UP Geelong - March 25

Step Up Geelong - 25th March
Steampacket Gardens, Geelong
10:30am - 1:30pm


Due to the high winds on Geelong Step UP day last October this event was postponed, so please come along on 25th March instead.  We hope all participants will be able to come along and enjoy their walk around the park and the family activities.
 


We want to hear from you - National Survey 

Down Syndrome Australia and Down Syndrome Victoria want to hear from our members. We are conducting a national survey to get more information about your experiences and the supports and services you need.

The feedback you provide will help us to make sure our services meet your needs. Your feedback will also help us to represent you on national issues, including advocacy to ensure the NDIS meets the needs of people with Down syndrome.

We will keep all of your information and feedback private. You can choose to give us your contact details. The Survey will take approximately 10 minutes to complete. 

Find the survey here
https://www.surveymonkey.com/r/DownSyndromeAustralia

If you need any help with the survey please contact DSA at info@downsyndrome.org.au.



  
 


Talking Education conference


This week Down Syndrome Victoria held it's annual education professional development day at Mantra Bell City.  Our inspiring Keynote speaker Anthony Semann captivated delegates with his ideas and anecdotes around mindset and inclusive practice in education. He challenged the group to take a close look at their workplace policies around inclusion and see if they are actually really ‘practicing’ them. He asked them to examine their own personal biases and to look at the workplace culture regarding inclusion.  

The program for the day also included presentations on Motor Skills, Positive Behaviour Support and Curriculum Modification. Parent Jo Montano gave a parent’s perspective on education and teacher Ellie and 10 year old Ayah from Newport Primary School treated the group to a video of Ayah at school before answering questions.
 
Bell City was a great venue for the conference and the Mantra staff and catering were excellent.

Feedback from participants so far has been overwhelmingly positive and we look forward to next year's event being every bit as successful.
 

Anthony Semann - talking inclusion

Special Olympics Australia              

 
Special Olympics Australia are one of our supporters for Family Fun Day.  We're glad to have them on board.  If you're into sport or just interested to give it a try, here's a little bit of what to expect from them when you come along:

Special Olympics is a volunteer run organisation, they operate world-wide in over 180 countries.  People with an intellectual disability can join as athletes in their training and competitions.  Athletes ages range from 6 to 60 years plus and compete at their skill level.

They have 12 clubs across Victoria offering multiple sports.  Across Australia 18 official sports: athletics, aquatics (swimming), bocce, basketball, equestrian, football (soccer), golf, gymnastics, netball, softball, sailing, tennis, bowling (tenpin) and others - not all sports are covered by each club, subject to volunteer availability.  

Athletes get to train and compete at their level of ability, encouraged to perform their PBs (Personal Best), get to meet other athletes and families from across Victoria, inter-state and overseas.  Athletes may do multiple sports or change their sport over time providing opportunity to experience other sports while staying with the same sporting organisation throughout their life-time.

Find your local club at: www.specialolympics.com.au
 
             
       

DSV Job Vacancy - Adult Support Worker

Kerry Hands, our Adult Support Worker has made a significant contribution to DSV over the time she has been with us.  She has, however, decided it is time for her to move on.  We are very grateful to her for all her hard work.

We are therefore recruiting for an Adult Support Worker (15-20 hours per week).

Adult Support is responsible for providing support to individuals (18 years and over) and their families who need help, both emotionally and practically, so they can live a happy, independent life.   This can include facilitation of opportunities for adults with Down syndrome to develop transferable skills and to extend social connections and networks.   The Adult Support Worker role will focus on the provision of personal support to families and individuals with Down syndrome.  The role maintains and builds effective lines of communication with participants, families, carers and other service providers and ensuring service delivery aligns to goals, outcomes and opportunity for an ordinary life for our clients.

For more information and to apply please go to the Down Syndrome Victoria website.

New Parent Morning Tea - April 21

        

Learmonth Market for WDSD - March 25

Once again Ballarat Support Group is running their market for World Down Syndrome Day. Come along and support this fun-filled day for the whole family.

        

DSVC2U Ballarat - April 27 and 28

 
The team from Down Syndrome Victoria will be visiting families from Ballarat and surrounds on 27th & 28th April.

The plan is, to meet for dinner at a local pub with families’ on the Thursday night (27th) then conduct some information workshops for families at Pinarc offices on Friday (during the day).
 
Topics to be advised, but may include: Early Days Workshops (pre-school age), Navigating the school years, transition to secondary school etc. (please feel free to email us to suggest topics)

Stay tuned for more information soon!
 
Expressions of interest being taken now - Ph: 9486 9600 ext 206 or E: training@dsav.asn.au

DSV will also be coming to YOU Mornington Peninsula in July and Shepparton in August
        

Club 21 update


Activities
Club 21 kicked off the New Year at Ikon Park, catching a second round game of the women’s AFL league, Carlton vs GWS. As it was such a lovely evening, we decided to make the most of the sunshine and had a picnic in the park after the game to catch up on all the goss over the summer.

Our second activity for February was a contemporary circus performance, One Beautiful Thing by Circa.  For this performance Circa collaborated with Indian mallakhamb artists to create an inspiring and jaw dropping performance.  A big thank you to Arts Centre Melbourne who donated 20 tickets to Club 21 for this performance, we had an absolute blast!

Facebook page
As of 2017, we will be closing the public Club 21 facebook page and creating a closed group for families, members and volunteers.  Information regarding Club 21 activities, photos from activities, information on external events and other relevant information will be posted in this group. Please search and add yourselves to Club 21 Members, Families & Volunteers” Once you have sent your request, a DSV staff member will add you to the group.  Please note this is only for Club 21 members, their families/ support workers and Club 21 volunteers.


Keep an eye on the DSV open Facebook Page as we will continue to share Club 21 highlights.

If you would like to join in the fun at Club 21 Melbourne please contact Casey, caseyt@dsav.asn.au

 

Hanging out at the footy
 

Sayantan Creative Studio fundraiser for DSV

Sayantan Creative Studio is hosting a fundraiser for Down Syndrome Victoria – so let’s show our support!  Please invite family and friends. The night is sure to be a fantastic evening of dance performances and supporting the Club 21 program.
More details here
 
 

Supported independent living opportunity


Thinking of moving out of home in supported independent living?
An opportunity to live with others is available now in Viewbank.

Sheena and Michael have asked DSV to share their independent living opportunity.

"We propose to lease the family home to our daughter and have one or two bedrooms available to peers. Our daughter is in her twenties and has a mild/moderate intellectual disability. She is social and active in her day programme and likes time on her own, or with friends and family, at other times.

Our aim is to provide a stable base for transitioning to independent living. We see it as a long-term plan that is sustainable under NDIS funding, and we want it to last many years. We believe that our daughter can lead a happy, fulfilling, supported life away from us.  We are keen to contact other families who have similar thoughts who would like to see their loved ones living similar lives. We are open to a gradual or quicker transition, and/or to a lead tenant model, depending on what suits. One of the benefits of being the ‘landlord’ is that we can be very flexible.

The house
The house is a simple, light-filled 1960s brick veneer set in a large garden. It has three bedrooms and two living spaces (shown below). It is in a quiet neighbourhood, and is a 5 minute walk to a bus stop that links Greensborough and Rosanna Railway stations. A cleaner comes once per fortnight and we will maintain the garden.
 

How it would work?
At a minimum, there will be a sleepover support worker for an initial period, then support workers rostered on weekday mornings and evenings. As parents, we expect to be quite involved in the transition, and are looking for families that want that as well.  Weekends would rely on ‘natural supports’ of family and friends. We expect that we will have to coordinate our daughter’s weekends.

In terms of prospective tenants, we think some travel-training and life skills experience are necessary, and a willingness to live away from their parents.

Where to start
Call us (Michael 0418 381 556 or Sheena 0418 506 942) or our housing worker (9439 2805 ext 123) for an initial discussion."
 

VALiD Our Choice Expo

 
  

Call out for My Voice submissions

           
Would you like to share your achievements with our national Down Syndrome community? Here’s your chance!

We are looking for submissions to the ‘My Voice’ section of Voice, our members’ journal which is published three times a year. My Voice is a section devoted to letting you tell your story – perhaps you’ve just started a new job, or have attended an awesome DSV event, or have a special occasion or triumph that you’d like to share. We’d love to hear it!

Simply send a short paragraph about your news and a high resolution photo to accompany it to voice@downsyndrome.org.au, and we’ll see if we can include it in the next edition of My Voice.

For further information, please contact Stephanie Papaleo.
Copyright © 2017 Down Syndrome Victoria, All rights reserved.


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