The European ME Alliance - a Voice for ME in Europe
EMEA Newsletter Summer 2021
Welcome to the Summer 2021 newsletter from the European ME Alliance (EMEA).
EMEA EU ROUNDTABLE WEBINAR VIDEO
The European Roundtable meeting - ME/CFS in Europe - that was arranged by EMEA and EFNA (European Federation of Neurological Associations) took place on 9th June 2021 and was a great success.
This was the first meeting in what will be a continuing series of meetings.
With participants from research, clinical, industry, policy making, healthcare and government the aim was to improve knowledge about the disease by openly discussing the issues with ME in Europe, proposing solutions and creating a focus group of stakeholders that can influence policies in favour of people with ME.
With a range of speakers and organisations represented we have made a good start on what will be a continuing series of meetings.
We are now pleased to share the video of the meeting which can be viewed by this link
The deadline for the EMEA pan-European survey of people with ME that is looking for patterns across Europe for the disease has been extended until mid-August.
Currently there are thirteen languages from within the EMEA membership that are available for completing this survey. Although not yet represented in EMEA there is also an option for Hungarian. If you are a European person with ME and if you have not already participated then we invite you still to enter into this important survey.