View this email in your browser
GDPR Brief: Joint data controllership in the genomics context
October 5
The concept of a data ‘controller’ is central to the operation of the GDPR because it allocates responsibility for compliance with data protection rules. In the genomics context, determining who is a joint data controller can be complicated.
GA4GH Mentions

The Great Data Science Promise For COVID-19, Opioid Addiction
October 12 • Bio-IT World, USA
[Dr. Susan Gregurick, Associate Director for Data Science at NIH] also highlighted “some really interesting work” from GA4GH: their Federated Analysis Systems Project, FASP, and emphasized that there is more to be done to enable workbenches and tools across platforms to be used with Jupyter, GitHub and other resources.  

Genomics Requires Greater Public Trust in Data Sharing, Researchers Say
October 6 • Medscape, USA
More work needs to be done to build public trust to avoid significantly hindering science, dozens of researchers connected to the Global Alliance for Genomics and Health write in the American Journal of Human Genetics.

Diversity, Ancestry, and the Tenacious Concept of Race: GigaScience at GA4GH 
October 5 • (GIGA)Blog, Hong Kong
With diversity such a key topic at [the GA4GH 8th Plenary], being a virtual meeting was a particularly useful way to increase voices and participation from across the globe.

Trust in data won’t come until people take responsibility for it
October 12 • SiliconRepublic, Ireland

Covid Is Strengthening the Push for Indigenous Data Control
October 10 • Wired, USA

Experts assess use of genome sequencing in multi-country outbreaks
October 9 • Food Safety News, USA

Promoting global collaboration for brain health research
October 9 • The BMJ, UK

Indigenous data sovereignty shakes up research
October 8 • High Country News, USA

Genomic Testing Utilization Is Low & Geographically Inconsistent but Not Just Due to Payor Coverage
October 8 • Laboratory Industry Report, USA

A Global Data Effort Probes Whether Covid Causes Diabetes
October 7 • Wired, USA

Milestone reached as usage grows in over 80 countries, a decade after launch
October 7 • Globus, USA

Mastermind Genomic Search Engine Now Part of Rady Children’s Institute for Genomic Medicine Analysis and Variant Interpretation Workflow
October 7 • Rady Children’s Institute, USA


Research imperialism shows need for functioning SA research ethics oversight body
October 7 • Medical Brief, Africa

The Human Cell Atlas and equity: lessons learned
October 7• Nature Medicine, UK

Researchers use multi-ancestry comparison to refine risk factors for coronary artery disease
October 6 • Riken, Japan

Australian first chromosome 15 disorders biobank
October 6 • Murdoch Children’s Research Institute, Australia

Arab population missing from global genomics database: expert
October 5 • Gulf Times, Qatar

Australian Genomics: Integrating genomic testing into healthcare
October 5• Research Outreach, UK

American College Health Association and Scripps Research Translational Institute Partner to Bring the NIH All of Us Research Program to College Campuses
October 5 • American College Health Association, USA

Humans Are All More Closely Related Than We Commonly Think
October 5 • Scientific American, USA

Covid: Test error 'should never have happened' - Hancock
October 5 • BBC, UK

Copyright © 2020 Global Alliance for Genomics and Health, All rights reserved.

Want to change how you receive these emails?
You can update your preferences or unsubscribe from this list.

Email Marketing Powered by Mailchimp