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Apr 2016 Vol 2 Issue 3
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I'm not autism, I'm Samantha.
April 13, 2016, Samantha
My name is Samantha. I almost 21 years old and this is my story. Growing up as a kid, I was very antisocial. I avoided people. I wouldn't let my own family get too close to me. I talked but was quiet and reserved. I never really knew why. I asked myself, "Why am I afraid of meeting new people?", "Why don't I like people getting so close to me?", "Why don't I have empathy?" I was diagnosed with Asperger's syndrome when I was about 7 years old... but I didn't understand my diagnosis until I was 15.
In elementary school, I was repeatedly bullied by other kids. I can't remember much of what they said but I do remember feeling unsafe. I didn't want to go back to school but I went anyway. I learned to ignore it. By the time I was 13, I hated myself. I didn't feel comfortable with myself. By the time I was 13, I went through a few therapists. I did not feel they helped. They just brought out board games and made me do journal writing. I did not feel like I made a connection with them. My mom explained my autism diagnosis when I was 15. It wasn't hard for me to accept because my brother had autism and I had sometimes wondered if I had autism too.

"I don't let my disability define who I am. I decide who I am. I'm not autism, I'm Samantha."

When I was 14, I moved to Orange County. The bullying stopped but I still had challenges. Meeting new people was still hard. I worked very hard through high school because I was determined to get to college. I had already decided that I wanted to go to college and nothing was going to stop me. I wanted to keep learning.
When I was 18, my mom looked for a new therapist. I had to learn to open myself up to therapy again so I said "sure". I ended up enjoying myself. I'm learning to open up to others about my feelings and not be a wallflower. I'm learning to put myself out there and show my personality more. I've learned how to have conversations with people, how to have more confidence in myself (it's still a work in progress), how to be a leader instead of a follower or a victim.
In 2013, I started Orange Coast College and discovered a passion to help others. I'm working toward my nutrition degree and hope to work with kids.
Most of the time I do fine with life's challenges but I still have more obstacles to overcome. Now I understand that even if you're on the spectrum, it doesn't mean you can't live a fulfilling life, accomplishing goals you set for yourself. Don't give up on your dreams and aspirations just because of a disability.
The thing that irks me is when people ask questions about stereotypical autism behaviors like "Do you have tantrums?" I tell them, not every autistic person is the same. We have different personalities, we are not just one group and one personality. I don't let my disability define who I am. I decide who I am. I'm not autism, I'm Samantha.
A HUGE "thank you" to Dr. Sharyn Kerr (ACES) who is doing tremendous work with Sam.  Parents... It is never too late to start helping our kids realize their potential and self-worth. Sam has come a VERY long way.  She found an uber-Therapist with whom she connected! I could not be more PROUD.  I share her excitement about her future as she navigates independence and claim her place in the world...
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